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Oct 7, 2018 · Decreasing Keppra in Epilepsy & Seizures

Hey all…I have been seizure free for a little over a year now. My doctor has me decreasing my dose of Keppra a little each week. Since doing this I have felt nauseous occasionally, have had shakyness/twitching (not visible, feels like its happening on the inside), and just weird feelings (hard to describe). I feel like this may be withdrawal effects…has anyone experienced this while decreasing this medication?
Thank you!

Jan 11, 2018 · Planning Visit for Epilepsy in Epilepsy & Seizures

Hi
I have been to the one in Rochester, MN. I had many tests done. As I’m 35 yrs old and didn’t have any seizures or health issues until last March. They did an EEG, MRI, CT scans, PET scans, spinal tap, numerous blood tests and lymph node biopsy ( only because my lymph nodes were lighting up on the PET scan). I was finally diagnosed with Auto-immune Epilepsy last September. I started going to Mayo in July. I have a neurologist and a specialist with autoimmune neurology. I have had nothing but good experiences at this location. I have stayed at the Kahle Hotel which is right across the street from Mayo and you can use the underground system to get to the clinic.
I hope this helps.
Amanda

Dec 4, 2017 · Auto-immune Epilepsy in Epilepsy & Seizures

Good morning,
Has anyone been diagnosed with Auto-immune Epilepsy? If so have you gone through immunotherapy treatment? I am asking because I just had my last steroid infusion 2 weeks ago. I am still on an immunosuppressant (CellCept) and my anti seizure meds (Kept and Trileptal). I am seizure free since July and have been back to driving since end of Oct. The reason I’m reaching out is every day I am in constant fear that I will have another seizure. And I think between that and all the meds I have been having really bad anxiety. I dont know what to do. I’m trying to take it one day at a time but it is hard. Everyday things/decisions are becoming difficult. People want to plan things/trips and I’m afraid to. I just thought if there was someone out there who has been through something similar it would be great to get your perspective.
Thank you
Amanda

Nov 18, 2017 · Daughter with Newly Diagnosed Generalized Absence Seizures in Epilepsy & Seizures

Hi my name is Amanda. I’m 34 yrs old and started having seizures the end of March this year. I had MRIs and EEGs done but turned out normal. The place I was going to at the time just kept switching my seizure meds and didn’t seem like they wanted to find the cause. As before all of this I was healthy with no problems. So I advocated for myself and made an appt at Mayo. And I’m so glad I did…my first appt with the neurologist gave me hope. I had more tests done (MRI, PET scan, CT scan, EEG, spinal tap, and others just to rule out cancer) and they worked with an auto-immune specialist and I was finally diagnosed in Sept with Autoimmune Epilepsy. They found an abnormal antibody (Gabba B) in my blood and CSF fluid. I am now on immunotherapy, just had my last steroid infusion and am on an immunosuppresant. I am feeling so much better and haven’t had a seizure since July. I don’t know if this would be relevant to your daughter, but I know my condition is rare and I believe still new. Not many people know about it. I am still on seizure meds for the time: Keppra, Oxcarbazepine, and clonazipram (to help me sleep and anxiety). My immunosuppresant is CellCept. The goal is to have me off all meds within a year (fingers crossed). I hope this information helps or at least opens a door for you to ask more questions to your doctor.
Good luck and you can always message me if you have any questions or want to talk.
Amanda 🙂

Nov 13, 2017 · Keppra in Epilepsy & Seizures

Hi, I’m 34yrs old and had my first seizure last March. I am also on Keppra. But also on a couple other meds. I was diagnosed with Autoimmune Epilepsy in Sept after many tests. I definitely understand “the blues” feeling. Some days are good and some I just want to stay in bed all day. And before my diagnosis the not knowing really effected me. Just take it one day at a time ( hard to do I know). Since being diagnosed I still have a hard time with “if or when will I have a seizure again”. Its very scary and if you ever want to talk you can PM too. Hope you find answers.
Amanda

Aug 29, 2017 · Newly Diagnosed and Trying to Process in Epilepsy & Seizures

Hi Mica,
My name is Amanda, I am 34 years old and had my first seizure in March and have had a few since then. I was diagnosed with Epilepsy and my doctors are currently trying to figure out the reason I am having these seizures (as of now may be auto-immune but running more tests to eliminate other things). I too have been overwhelmed with this diagnosis as I have been healthy up to this point in my life. I am not a teacher but I am a vet tech at an animal hospital in MN, so far they have been really supportive. As of now there are a couple rotations that I am unable to work in but things have worked out. It’s just a waiting game for me while I have more tests done. I joined this group because I didnt know anyone else with this condition. It’s nice to know we are not alone. 🙂

Jul 20, 2017 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Hello…they increased the Keppra because i had 4 partial seizures and a gran mal seizure in a row and then another seizure the next day, a few weeka ago. Not due to weight gain. I was admitted to the hospital this past Monday after having another seizure Monday AM. I am still in the hospital being observed and having an EEG done. So ready to go home. They are trying to trigger a seizure but no luck so far.

Jul 10, 2017 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

They increased the Keppra because i had seizures this past weekend. I had been seizure free for about a month.