Will there be discussion on other sarcomas or will the focus be on the sarcoma featured?
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Hi. I have been battling myxoid liposarcoma with round cell for 6+ years. Mine has around cell component. Mayo is the best. Radiation has few side effects. I would get tired more easily. Towards the end of treatment you may have skin breakdown. Myxoid responds well To radiation. You should have good results. Stay positive. It’s a marathon not a sprint.
What I've learned during the last 6 years:*The actuality of my situation is rarely as awful as my imagination.*There is always reason for hope. What you hope for may change but there is always hope.*Dont believe everything you read on the Internet about your prognosis. Often, what you read on the Internet is best case or worst-case. We are rarely best case or worst-case. *When your situation is hardest remember that you can get through the next 60 seconds. Break it down as much as you need to. *If you are working with Mayo Clinic, you have world renowned doctors who see Sarcoma daily in your corner. Make certain you are at a sarcoma center. A regular oncologist may only see one or two sarcomas in their career. *Don't ignore your mental health. Ask for help getting through treatment and the fear following treatment. There are options.
I have regular follow ups and scans every 3-4 months. I went on an anti anxiety drug this year. That helped. I'm stuck with Mayo as they have been awesome. I'm feeling hopeful. My doctors have me convinced that I need to look at my disease as a chronic condition. I stay on top of it. I have a wonderful support group of family, friends, and coworkers. I don't know how people without support survive this.
Hi. I was diagnosed with myxoid liposarcoma with round cell when I was 47. I was misdiagnosed locally for two years prior to get a diagnosis from Mayo. I have had one large primary tumor in my thigh. I’ve had three distant recurrences. I will be celebrating my 6th year survival anniversary in August. I’ve found much support on the sarcoma support groups on Facebook.