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Jul 16, 2017 · Autonomic Dysfunction in Brain & Nervous System

I wish you good luck at Mayo…totally understand the husband thing. I had several MRI’s, head, neck, back, liver ect…all neg. But thank you for responding and offering help & wisdom, very much appreciated ! Good luck & prayers for you and your husband.

Jul 16, 2017 · Autonomic Dysfunction in Brain & Nervous System

Hello @johnbishop, and thank you so much for the video from Ted…it was very interesting and kinda scary also. It nevers stops to amaze me when you have a case in which you have to think outside the box, doctors rely on “it is all in your head” diagnosis. Sad. I have learned to avoid trigger words, emotions and mentioning certain symptoms to keep from losing a doctors attention. You can literally watch their interest disappear in your case. And the standard relpy of, do this test and I will see you back in 3 months drives me up a wall. Why 3 months ? Are things going to be better in that time period, no, no they are not…so the patient lives in limbo, waiting, hoping and praying. Thank you again…

Jul 15, 2017 · Autonomic Dysfunction in Brain & Nervous System

Thank you so much for responding ! And no, I am not a teenager, have a teenager though…the doctors really have no idea of what to do. Today, I fainted just walking across the back yard and it is frightening as well as annoying. My day is then spent on the sofa recovering. The Neurologist suggested either Mayo or Hopkins, I live closest to Hopkins (NJ). And it is truely an investigation and I am the lead investigator, which also is frustrating. Something with my system feels off, or unbalanced and seems to set in motion a chain reaction of events, fainting, weakness, dizziness, GI upset ect. . Since I have several doctors, Neurologist, Cardiologist, GI, I would like to find “a” doctor to oversee everything but haven’t had any luck. I was hoping there was a specific field for this, but it doesn’t look like it…thanks for the links, maybe they can shed some light. Tucker is my poodle mix that will actually sense when I am going to have a “bad” day and literally sit on top of me and stare at me. It freaks me out sometimes, lol….

Jul 15, 2017 · Autonomic Dysfunction in Brain & Nervous System

I am curious about this topic, which was mentioned during a recent doctor’s appointment. I have been sick for 15 months with vague but debilitating symptoms. The short version is I had sinus surgery 02/2016, developed Shingles & mono 4 months later that was the result of an undetected sinus infection. Treatment with antibiotics and steriods for a month cleared the infection, but I have been left with other problems. I have heart palpitations, GI problems, fainting, dizziness, extreme fatigue, weakness, body temperature problems and with tingling sensations in my legs and lung pain. I have been scanned, stress tested, tilt table test, endoscopy, colonoscopy, EMG, ECG, heart ultrsound, blood work and now have a loop recorder for the heart. I get a swelling sensation in my chest on the left side that causes dizziness, belching, pain and fatigue. I do have a hiatel hernia and gastritis. I am gluten free, dairy free, red meat free and have been to 15 doctors. I went to running 3 miles a day, lifting 50 pound bags of grain and hay, working full time and taking care of my family. I presently can do small amounts of housework. The last doctor mentioned Autonomic Dysfunction and told me to research…google is vague and cannot find a doctor to who treats this disorder. Any suggestions wil be helpful…running out of options.