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Jul 1, 2017 · Diagnosed with sarcoma? Let's share in Cancer

My oncologist did tell me that the nausea is pretty well managed by meds, and I also have my own “plan” to help deal with that [with my oncologist’s “blessing”, so to speak. He said the main complaint is extreme fatigue.

Jul 1, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Hi!
I guess my main concern is fear of the unknown and I worry that I may not tolerate my “cocktail”. I am less concerned with losing my hair than the nausea/vomitting and protection of my bladder and kidneys. I need to drink 80-100 ounces of fluid daily, and I worry that nausea may interfere with the ability to do that. I feel pretty great right now, and know that will all change in 10 days. I am maintaining a positive attitude for the most part, thanks to my little Jesus Calling devotional and meditation, so at least there’s that. It feels strange to be more afraid of the treatment than I am of the cancer.

Jul 1, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Hello Teresa,
Thank you for responding and for your words of encouragement. I am recovering very well from my surgery, 4 weeks post-op. I DO have the most wonderful support system in family and friends. I am MOST fortunate to have my wonderful husband of nearly 40 years, along for this ride. 🙂 My faith is strong, and I like to say that it’s steadily growing faster than the cancer ever was. I have also begun meditating, which has helped me in ways I never imagined. I decided very close to the onset of this journey to use FB to tell my story and keep those interested informed. That has opened floodgates of prayers & love that have wrapped their arms around me. It’s been overwhelmingly joyful at times. While I’ve often thought about what it would be like to experience continuing education later in life, I never imagined this type of education. 😉 But, it is what it is, and I continue to be thankful for every day that I am being gifted. ~ Diane

Jul 1, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Hello,
I was diagnosed with endometrial carcinosarcoma with metastases to the cervix on May 17th. I had a complete hysterectomy with removal of the omentum and 2 pelvic lymph nodes, one “looking suspicious”, on June 2nd. Pathology came back negative on the nodes and omentum. Path also came back positive for cancer cells “floating” in the abdomen. I am scheduled to begin a 6 cycle course of ifosfamide/taxol chemotherapy on June 10th, not at Mayo, but in Madison, WI. My laparoscopic/vaginal hysterectomy was done by a UW Carbone Cancer Center surgeon/oncologist. Surgery went as well as could be expected, and in some respects better, as the original plan was to remove all lymph nodes in the pelvic region, which turned out to be unnecessary. Uterine tumor was very large [7cm. x 3cm. x 2cm.]. Apologies for my text being a bit out of order. Feeling anxious about upcoming chemotherapy, but I guess that’s in the realm of our new normal now. We’re obviously in the early stages of trying to navigate through this “Brave New World”, and trying to figure out where/how to find women with my type of cancer.