Update on my daughter. She started trial in June and her tumor had grown substantially. We had first MRI last Wednesday since she started clinical trial and the results are amazing. The tumor has shrunk a lot so she will continue on with trial. She is feeling pretty good and we are so happy with the results. The fear up to getting results was getting to everyone. The night before I had a panic attack. My anxiety has been just terrible.
Also I would like to update on tumor- when 1st diagnosed she had a PXA the 2nd tumor was called a glioblastoma grade 4. There was one report that still said a PXA but 2 reports, one from Mayo Clinic said it was gbm. I know the odds with this evil cancer. They aren’t very good odds of surviving long. I so hope this trial is the miracle all need who have this evil cancer.