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Oct 1, 2018 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Thank you Kari.
One concern I have is that patients on opioids could accidentally overdose. I take a low dose, one 5 mlg. tablet before a meal.
Another concern is the annoying side effects, feeling out-of-it, and dizzy. I guess I need to get used to it. I will be seeing my doctor this Friday and will discuss these issues.
Once again. Kari, we are all so lucky to have you as a mentor. You have so much compassion.

Sep 30, 2018 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Thank you for your encouraging thoughts.

Sep 30, 2018 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Kari, you are awesome.
I'm still hanging in there. Still 109 pounds at 6 foot,1inch. I can't gain any weight unless I can stop the pain and exhaustion.
My doctor has me taking a trial course of oxycodone, 5 mlg., 1/2 hour before I eat. I think it's working but I'm not comfortable about taking opioids. I keep a very close record of when and what I take in a daily notebook. I'm curious if anyone has ever taken opioids before eating and how successful they found it? The MALS surgery did not relieve the pain and exhaustion when I eat. Of course I eat small meals and avoid hard to digest foods.

Apr 20, 2018 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Thank you Kari for your informative response.

Medical Marijuana is legal in New Mexico. You have to pass a medical review and get a registration card. That said I have been using a very low dose of Indica sublingually. The Indica hybrid of marijuana has a very small amount of THC, the substance that makes you high. I take an eyedropper-full at night if I'm having trouble sleeping. It basically makes you feel sleepy. It has not helped me with pain. And I don't feel any side effects.
I think I'll investigate sublingual Nitro. Nitroglycerin I assume.
And I'm definitely looking into trying a celiac nerve block.

Thanks so much.
Lou

Apr 19, 2018 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Hi Kari.
I'm so grateful for your presence and caring in our little MALS community.
I have a big question.
I had the open MALS surgery and celiac nerves cut in July of 2017. However, I still have great pain, cramping and exhaustion after eating small meals. I'm struggling to keep my weight up at 119 pounds. I'm 6 foot, one.
My Question is: has anyone had the celiac plexus block after the MALS surgery? And did it help with the pain and bloating and allow you to increase your food intake?
One more question.
Is anyone on pain meds? If so are they effective?
I'm taking Lyrica, 50 milligram capsules, one, 3 x's a day. Lyrica is for diabetic nerve pain. Currently I'm cutting down my dose and then bringing it back up so it can retain it's strength at the original dosage. The Lyrica is not a total fix, but it has helped

Any comments will of course be greatly appreciated.

Lou D'Amico

Jan 11, 2018 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

I have not noticed any side effects from the Lyrica. I have in fact gained weight. At 6 foot one, I’m now at 120 pounds. I was down to 108 pounds in July after my surgery. My appetite has pushed me to eat more, but I still struggle with weakness and exhaustion. I will keep you posted. Lou

Jan 11, 2018 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Hi Kari, I’m doing a little bit better. ( That means the pain and bloating are less severe and I can sleep at night.) I’ve been taking Lyrica 50 mg. capsules, 3 X’s a day along with 2 caps of Tylenol, 500mg each, 3 X’s a day. Lyrica is for diabetic nerve pain and it has made a difference in how I’m feeling. I’m sorry to hear your meds are not working. New Mexico has legalized medical cannabis and I’m in the process of getting approval from the state authorization office. I’ll keep you posted on this. As far as pharmacology testing goes, I’m not sure what you mean. I have however gotten blood tests to check my mineral and vitamin levels given all the drugs I take and being cautious about depleting my system. This I’ve gotten with my doctor’s referrals to Tricore Testing. I would like to recommend the Cleveland Clinic in Ohio. Their Vascular Institute has been very involved in treating MALS patients for quite some time now. I plan to go up there in March to see Dr Rodriquez. There are no doctors or surgeons here in NM who know how to treat MALS patients. I need a treatment plan. I need to know what else can be done. Thank you Kari for your kindness and caring in keeping up with our community.
Lou D’Amico

Nov 27, 2017 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Has anyone with post surgical MALS symptoms tried medical marijuana for pain and as an aid to eating more?