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Posts (15)

Jan 13, 2018 · What causes the bacteria to grow in some people and not other? in MAC & Bronchiectasis

I think it’s very likely there’s a genetic component to both Bronchiectasis and MAC. My sister was diagnosed w/ Bronchiectasis some years ago. I wouldn’t be surprised if my Mother had it also. She was often clearing her throat, blowing her nose and coughing. And yes, it’s more common in post menopausal, slight women. There may also be an immune issue involved with the infection. However, when I talked to my specialist about it, he said, as of now, there’s no way to tell. There hasn’t been enough research done in this area. Maybe someday soon there will be.

Jan 12, 2018 · What causes the bacteria to grow in some people and not other? in MAC & Bronchiectasis

Hi, To answer your questions ( I didn’t see your name); 1. I’ve never smoked tobacco. Only marijuana in my 20’s. I’m now 65. I was diagnosed w/ MAC May 2016. 2 .I’ve never worked in the medical profession. 3. I’ve never had the whooping cough. 3. I was raised in the Boston, Mass. area but have lived in Northern CA. longer in the bay area. Good luck with your research. Thanks. Rona

Dec 23, 2017 · Practical questions about nebulizer, shower head filters & gargling in MAC & Bronchiectasis

Hi Terri,
I can’t remember if I replied. Thanks for the suggestion of what you do w/ your nebulizer cup. I’ve been putting mine in boiling water every third time I use it and nothing happened; i.e. it didn’t melt. However, now I’ll be more careful. The instructions say it’s OK to boil and to change the cup every 6 months. I’ll have to re-read the instructions. But this is what I recall.

Dec 21, 2017 · questions continued in MAC & Bronchiectasis

Hi, This is good information. Thanks for asking this Dr. Would it be possible to run this by him; I use a nebulizer 3x a week to inhale amikacin. Thus, I don’t add any water. The directions said to boil it in tap water alternate times. The other times alternately, soak it in soapy water ( I use liquid dish detergent) with hot tap water and rinse. It can also be put in the dishwasher, which I don’t do. So,now I’m wondering if rinsing it in tap water isn’t such a good idea.

Dec 21, 2017 · Practical questions about nebulizer, shower head filters & gargling in MAC & Bronchiectasis

Hi, My Dr. advised gargling after inhaling amikacin. It’s really tough on the throat. I gargle w/ warm water and honey. It seems to help. I used to lose my voice when I first started inhaling it. Now, I’m fine. However, I’ve cut back to 3x a week. I can’t tolerate it more.

Nov 7, 2017 · Treatment Option in MAC & Bronchiectasis

Thanks Windwalker, I heard from dmarks. I hope there are more people out there who’ve gone through surgery successfully or not, that can reply to me. I’d be very interested in hearing about people’s experiences. If they’ve remained MAC free or didn’t need treatment again after surgery. Is there another way for me to post this question? I’m still not sure I’m using this chat line correctly. Rona

Nov 7, 2017 · Treatment Option in MAC & Bronchiectasis

Yes, I understand the meds need to be taken together. I’ve been on the meds for 14 months. I do sputum tests every month. I’m not sure what you mean by “determine exactly what germ it is”. The MAC I have is intracellulare. (not sure of the spelling).

Nov 7, 2017 · Treatment Option in MAC & Bronchiectasis

I’m not sure who you’re asking here? This is Rona, who’s going to meet Dr. Mitchell. My Doc at Stanford, Dr Ruoss, had me tested over a year ago w. 3 sputum cultures and a 6 week wait of culturing it out, to determine which MAC I have. It’s intracellulare. I assumed that’s how he figured what drugs to put me on.