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Jul 3, 2017 · Ruptured dermoid brain tumor in Brain Tumor

Thank you for the reply. That does give me some reassurance, believe it or not. Just to know someone else is leaving it alone. Mine I located in my temporal lobe adjacent to the sylvian fissure and the ruptured pieces are spread throughout but have not changed. I did meet a neurosurgeon from a hospital in Boston at a conference a couple of weeks ago that said he would probably lean towards taking it out but did say he is more aggressive with tumors and would just recommend another opinion. I don’t think either option is that comforting…leaving it in or brain surgery :/ Thanks for the reply!

May 31, 2017 · Ruptured dermoid brain tumor in Brain Tumor

Yes. This is one that typically occurs during development (in utero). This can give you more peace since I have been fine up until this point. I think, because it is so rare, I would just love to know there are others out there living with the same thing with no symptoms. 🙂 Thank you so much for your responses and time.

May 31, 2017 · Ruptured dermoid brain tumor in Brain Tumor

I failed to mention the discovery was after a car accident where I just had a bad headache and they did a CT.

May 31, 2017 · Ruptured dermoid brain tumor in Brain Tumor

I actually have not had it removed. Since I have had no real neurological symptoms, my neurosurgeon does not want to touch it. I am just followed on an annual basis. He said the worst thing we are hoping for is that I am just aware it is there. That is my prayer but it can be nerve wracking.

May 31, 2017 · Ruptured dermoid brain tumor in Brain Tumor

Has anyone else been diagnosed with a ruptured dermoid brain tumor? So little info out there. I feel fortunate and blessed with no real symptoms to this point other than headaches but wondering if anyone else out there.