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Jun 29, 2017 · Livedoid vasculopathy in Skin Health

Thank you for your responses. I only use Santyl sparingly right on the ulcer and change twice a day. Because of the thinning I also only use the cortizone when so itchy I need help. I take a full dose aspirin and anagrelide to reduce platelets. I am not sure how Xarelto exactly works to help. One of my Dr’s has mentioned it.

Jun 28, 2017 · Livedoid vasculopathy in Skin Health

Being new to LV I have a simple question. I have an ulcer on my ankle for about 7 months now. It seems to be finally closing but around it the skin is all red and bumpy and around that it is so-o itchy. I do use Santyl on the ulcer and have tried honey around it and sometimes cortisone 10. Does anyone with more experience have any other suggestions? Thank you.

May 26, 2017 · Livedoid vasculopathy and thrombocytosis: related? in Skin Health

Hi,
I thank each of you for your answers. Actually, LV is very new to me. I’ve had an ulcer on my ankle bone for about 5 months. I
was hospitalized because doctors thought I might have osteomyelitis, which it turns out I did not. But I did have extreme pain in
my foot and up my ankle. Which I assumed was from infection. I did have a graft while in the hospital. Since being discharged
I have been seeing the podiatrist/ surgeon I saw in the hospital (just by luck). He was the one who really investigated what was
going on with me. As I have been seeing him, I asked him to check out my other ankle, which had a white looking sore and seemed
to me like I was going to have the same thing happen. He then called just the other morning and told me to learn about LV. I
have had essential thrombocytosis for at least 25-30 years. Seems like a life time. Funny thing is, in the last year my meds for
ET got mixed up and I started another drug (hydroxurea) which could also cause the sores. I have just changed that and have
added a 325 aspirin. I understand the platelets can cause a lot of problems for healing. So, in regard to the ulcer I do still have,
I put santo on it 2x a day and I have been having a compression cast put on once a week, for 3 days. This combo, just started
about 3 weeks ago has been helping and my ulcer has started to change and look better. I feel a little better because my podiatrist
is great, always inquiring about way to treat me. And now my hemotologist is working with him. I guess I am looking forward to a lifetime of this. Not to happy right now.

May 25, 2017 · Livedoid vasculopathy and thrombocytosis: related? in Skin Health

I was interested to know if anyone with this LV has thrombocytosis. I have just been diagnosed with LV and wonder about reactions that could be from my original disease. Thanks for any help.