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Jun 10, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Many thanks Colleen.
My side effects are the usual…. nausea and diarrhea, plus feeling very sleepy about an hour after taking them.
My doctor has me going for blood test once a month. From reading these pages I will also discuss with him hearing and sight tests.
I was lucky enough to be sent to an eye specialist when they were trying to diagnose me so we have that base line to start from.

I had a wonderful consultation with a nutritionist that comes to my work place, Rebecca Dietziel from New York.
She gave me advice on probiotic foods, foods that have some antibiotic qualities and others that will help boost my own immune system.
I figure that if I follow some of these guidelines it’s my own way of “fighting back” and it gives me a feeling of being in control of my infection!

Once again many thanks to everyone for your thoughts on this page…..

Oh, by the way I bought a Cambridge mask because of advice on the page….. USA would not ship to Canada so I got it from the UK.
It was here within 4 days!

Jun 10, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hello, I am new to you forum.
I would just like to begin by saying how helpful all of your comments/advice has been.
I was diagnosed with MAC and mild bronchietasis about a month ago and I’m on the 3 medication regime 3x a week.
I am so pleased to read that the side effects of these do diminish over time!

It took my doctors 4 months to make the diagnosis – first a cough that wouldn’t move and went to pneumonia, then low pulmonary function results, a CT scan, and a bronchoscopy.
I had never heard of this infection before!

I live in Toronto Canada and wonder are there any other Canadians here?