About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (6)

Nov 3, 2018 · Can I go from daily Morphine to pain control from CBD oil in Chronic Pain

Hi, I am in MN as well and would really like to see if cbd oil instead of opioids would be an option for me. I am in so much pain all the time and no one can figure out why. It’s just more meds to bandaid the problem but never get to the root of the cause. I think I need to find a legit Lyme doctor maybe. The only problem is the last time I had to renew my pain contract it stated I could not use cbd. So my thoughts are doctors don’t really want us knowing if this will work for us or not.

Jun 9, 2017 · Mast Cell Activation in Blood Cancers & Disorders

Does anyone know about the progression of mast cell activation disorder? I’m back speaking about my daughter. Last October she was a vibrant young wife and mother and now she is a shell of a person. Her list of low histamine/Nicole free foods is getting smaller by the day due to reactions. The sun and heat make her react. She has gastritis and severe constipation where she is having to do daily enemas. She is on quercertin and just started keto fin ( my spelling my be totally wrong on these) but she started that yesterday and got blisters on her lips and a tight throat so I fear she may be allergic. She’s allergic to all the supplements she used to take and when I spoke to her last night she told me the only time she’s not in pain is when she sleeps. She’s very depressed. I feel like she’s slipping away. She has an appointment in august at Mayo but my fear is she mentally won’t make it that long. Why does it seem like drs don’t take this seriously?

May 23, 2017 · Mast Cell Activation in Blood Cancers & Disorders

Yes the allergies are severe. She had to leave her job because she became allergic to the tools, soaps, gowns etc. she was a blistering mess. She has reactions to water because of nickel in the pipes as well as when she touches door knobs, shopping carts, eating utensils etc. she has had to discontinue all her supplements she was taking, important ones as she has the rare mthfr gene mutation and also has thrombophilia. Foods have been a challenge. She has a small child and she suffers from a lot of fatigue and joint pain so I try to help as much as I can. Thanks for all your responses

May 22, 2017 · Mast Cell Activation in Blood Cancers & Disorders

Thanks for your input, any information is appreciated. I will make note of these things

May 22, 2017 · Undiagnosed auto immune disease in Autoimmune Diseases

@larson10 Have you ever been tested for mast cell activation syndrome?

May 22, 2017 · Mast Cell Activation in Blood Cancers & Disorders

Hello, my daughter was diagnosed about a month ago and currently sees an allergist who has her on Allegra and Zantac and a low histamine diet. She’s allergic to nickle which eliminates a lot of the foods so she is left with not a whole lot to eat, she has also already had reactions to some of the low histamine foods. She is becoming very thin and her hair is falling out, her heart races and she has vibrations throughout her whole body. Dr afrin is not even putting anyone on a wait list (even though we live in the area incase of a cancellation) because he is scheduled out to 2019. Mayo has said they aren’t taking any more patients. Does anyone know any doctors that have expertise in this life robbing disease?