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Posts (7)

Jul 26, 2017 · Looking for Answers in Ear, Nose & Throat (ENT)

Hi Jeff – thank you so much for your response and so quickly. I truly appreciate it and will call to see if I can get her in at Dr. Moore quickly. Thanks and I hope you are doing well.

Best,

Michele

Jul 25, 2017 · Looking for Answers in Ear, Nose & Throat (ENT)

Hello –

I am looking for insight and direction for my daughter. She is 26 and is, at this point, scared and beyond frustrated. She has been sick for 9 months. Symptoms are a severe sore throat that comes and goes, some difficulty swallowing, fatigue, swollen lymph nodes, weight loss without trying, night sweats that come and go. She has been to multiple physicians and different specialties looking at a few different things and has had multiple labs run. No answers and she feels like no one is helping her or digging deeper. She truly believes something is seriously wrong and she is scared.
I suggested that we try Mayo but again, I have no idea on what direction to go at Mayo? Does anyone have any contacts or suggestions? One thought I had was a good ENT that is willing to dig deeper and look beyond or perhaps a physician that specializes in complex cases where there are no answers.

I am a bit scared and frustrated myself and truly trying to figure out what to do next. Thanks for any thoughts or insight.

Best,

Michele

May 25, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi John
Thanks so much for your response. I truly appreciate your insight and suggestions. I will look at the links and I am pursuing getting an appointment for my daughter at the Mayo. There are a lot of physicians at Mayo – I am wondering if anyone of the site has any suggestions of a good physician to start with or someone that they have had good luck. Thanks again and have a wonderful holiday weekend!

Michele

May 21, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Nancy –

I will check on that – I know they checked her thyroid but not sure if it was specific to parathyroidism? Is that different? I will look back at some of her labs etc and check calcium and if there is anything in regards to parathyroid. I appreciate your response and question!! : )

May 21, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Thank you so much for your response. I agree with you. I know it is a long journey and one that takes diligence and persistence. I appreciate that you shared this with me and also your suggestions. Very helpful. I hope that you are getting answers and feeling better as well. Have a nice weekend and thank you again.

Michele

May 21, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Kristine –

Thanks so much for your response and kind words. I appreciate it and we will keep searching until we have answers. I agree with you and have thought allergy of some sort as well. I hope you are doing okay and have a wonderful Sunday.

Michele

May 21, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Kelsey, I am actually in search of answers on behalf of my daughter. I’m hoping to find help for her whether it is a good doctor to go to, ideas on treatment or diagnosis or just connecting her with other people that have similar symptoms. My daughter is 26 and started feeling sick last fall. She has had multiple doctors appointments, several tests run and there seems to be no answers. She is missing a ton of work, has no quality of life and is feeling very helpless and losing hope. There are no answers and no diagnosis. She has swollen lymph nodes, a constant sore throat and feeling like her throat is swollen, lack of appetite, exhaustion, fatigue and pain. I am wondering about chronic fatigue syndrome or fibromyalgia or something like that but not sure. I feel like she is giving up and I’m trying to help. I found this site and thought there may be good information here or at least recommendations of good providers that will search with her for answers. Thanks Kelsey.

Michele