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Sun, Sep 1 7:20pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

You bet ya gussypup333! Everyday many times usually and when I’m in a bad spell -it’s like non stop with back labour pain. 😳-and you!?

Wed, Aug 28 9:26am · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Morning @elle1233 -sure sounds reasonable to me. It’s good to know there is someone else out there who may share your issues. I have come to understand that as crazy as we have felt, how frustrated our pain is to explain or understand -the more we try to share our experiences-the better it all is. We may be few but we are not alone. Thank you for sharing with us. Your experience at the Mayo sounds good. I hope they discover and pinpoint to help you feel better soon. I understand “years of pain” and your persistence to find out is remarkable.👍❤️Please keep us in the loop!

Tue, Aug 27 3:26pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I sure agree Kimh -a routine but no drama. I am retired now but taught in reform school, a very large prison,a psychiatric hospital and crazy kids ❤️ In jr and sr high school. But state of mind was so important. Calming, to bed early and positive self talk essential. I travel a great deal and eating bland can be a challenge. Be well-thanks for sharing!

Tue, Aug 27 3:18pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I am envious! Wish I could see him. I haven’t seen a knowledgeable Doctor since being diagnosed. I live far north in Canada and getting a recent CT just seems too much. My Doctor pretends I’m crazy and there is no such disease. 🤪😆

Tue, Aug 27 12:47am · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi elle1233, does seem like they are discovering much about this organ. I am thankful for sure. Please feel free to share with us. Although we have some issues/concerns that are similar, many seem very mysterious. As kimh said earlier-we learn by sharing. 👍❤️

Mon, Aug 26 8:11pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Lol!🤣I’m not sure about that kimh. I sure agree with the idea that stress upsetting all. My motto has become “keep smiling, keep moving.” Being positive, developing good coping skills and becoming creative has helped I’m sure!❤️

Mon, Aug 26 4:02pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Morning all! Doctors agreed when I was diagnosed that I probably have had this since I was young. I had hypothermia as a young person and developed terrible gut issues after that. In and out of hospital at least 3 times a year. But auto immune diseases run in my family like crazy as well. I’m old now -turn 70 this year!-and I’ve learned to live a pretty full life with it, juggling factors that effect quality. But you are sure correct kimh- being diagnosed and knowing some of what this disease is all about – very comforting. Doctors kept telling me for years that if I would only leave a less stressful life I would be fine, if I stopped doing such and such then -. Took many years to end up finding out that it wasn’t in my head! 😊