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1 day ago · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Welcome @ghennel, many of us have had similar experiences. But we -together-have been able to aid each other with important foods/diets to try and medicines that help. Mayo clinic has been a great help to others who have been able to take advantage of it. Ask lots of questions on the site, share your experiences and those of your daughter. Many choices help, cut back on all the stress you can, change your life to get more rest -as much as you can – and try some other suggestions on diet and medications. Best of luck -stick with us!❤️

Fri, Nov 8 10:12pm · No answers yet. Inflammed, bloated and abdominal pain in Autoimmune Diseases

Hi @yrose-thank you for joining our group! We sure have all have had most of your experiences! You are in the right place! I too had the “perfect halo” show up on the CT. I was diagnosed many years ago and generally found somethings that work for me. Right now I -with many diet specifications, a positive outlook, much rest and a few giggles a day -can actually manage a somewhat good life and even travel with little pain and only some discomfort. It’s all good really. It can be overwhelming for sure. But knowing there are others to talk to helps tons! Sending good thoughts -track your food and activities to see what you can manage and not. Go to bed early every night you can-rest as much as possible. Talk to us and ask lots of questions-we are all a little different but share much. ❤️

Wed, Oct 30 5:41pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Welcome jr8865! It’s always good to have one more of us communicating! I am in Canada and diagnosed many years ago by CT. How are you managing?

Sun, Sep 1 7:20pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

You bet ya gussypup333! Everyday many times usually and when I’m in a bad spell -it’s like non stop with back labour pain. 😳-and you!?

Wed, Aug 28 9:26am · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Morning @elle1233 -sure sounds reasonable to me. It’s good to know there is someone else out there who may share your issues. I have come to understand that as crazy as we have felt, how frustrated our pain is to explain or understand -the more we try to share our experiences-the better it all is. We may be few but we are not alone. Thank you for sharing with us. Your experience at the Mayo sounds good. I hope they discover and pinpoint to help you feel better soon. I understand “years of pain” and your persistence to find out is remarkable.👍❤️Please keep us in the loop!

Tue, Aug 27 3:26pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I sure agree Kimh -a routine but no drama. I am retired now but taught in reform school, a very large prison,a psychiatric hospital and crazy kids ❤️ In jr and sr high school. But state of mind was so important. Calming, to bed early and positive self talk essential. I travel a great deal and eating bland can be a challenge. Be well-thanks for sharing!

Tue, Aug 27 3:18pm · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I am envious! Wish I could see him. I haven’t seen a knowledgeable Doctor since being diagnosed. I live far north in Canada and getting a recent CT just seems too much. My Doctor pretends I’m crazy and there is no such disease. 🤪😆

Tue, Aug 27 12:47am · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hi elle1233, does seem like they are discovering much about this organ. I am thankful for sure. Please feel free to share with us. Although we have some issues/concerns that are similar, many seem very mysterious. As kimh said earlier-we learn by sharing. 👍❤️