JK, for kidney transplant 20 or below on the GFR seems to be the magic number. My husband took a plunge to 11 per cent so we knew it was time. Thank you! Faune
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Hi, Rosemary. Wanted to let you know my husband and I are scheduled for our kidney transplant Monday, Nov 5 in Rochester. We just returned from there after additional testing. His GFR has dropped to 11 per cent so it is time to proceed. I am still the donor so we have been making double arrangements in terms of support people, rooms at the Gift of Life Transplant House, etc. We return to Mayo on Nov 1 for pre surgery tests on Nov 2. Excited to make this happen and grateful for the large Mayo team that makes it possible.
Don’t be surprised if they order more tests after you return home. I had to have more blood work done, a chest CT, pulmonary function test and repeat the 24 hr urine test which I had messed up by not drinking enough fluids while running from test to test at Mayo. The hard part was getting doctor’s offices here to follow up on sending reports and a CD. I envy people who live in Rochester and have access to that kind of medical care.
Rosemary, I really don’t know what the next step is. I just found this out right before Christmas and my regular donor nurse was out of the office. Since he is holding his own right now it would be better for us to wait a few months because of moving his business, etc. but we are keeping a very close eye thru regular blood work on his kidney function. There is a lot of planning involved in doing this, including someone to stay with our pets and house sit, someone to maintain the business, lining up the caretakers who will be with you, where you will stay, how long you will be there, etc. My work is portable online so I don’t worry about that one. We also have put our large home on the market in an attempt to downsize and make our life simpler. I am ready for less to maintain! So basically I will be taking this one step at a time with so many things on our plate right now. I will have to hear from Mayo next to get their imput on a timeline.