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Jun 2, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you very much Katherine for your information!

Jun 2, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I will ask my doctor when i go back about checking my hearing! I may also see if i could change the time i’ve been taking my antibiotic from night time to morning or afternoon. The pharmacologist is the one who recommended to take at night so i would sleep through the side effects, but I think the side effect for me is trouble to go to sleep. They want be checking my vision again for another 6 months unless i start having a problem with my vision. I hope and pray it will not change!
Thank you for your info!

Jun 1, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

they aren’t checking my hearing on Azythromiacin?! They just had me feel out a survey regarding my hearing now, but they have never said anything about checking it. I had to get my eyes checked for a baseline of my vision before i started this antibiotic. how about you? how long have you been on this antibiotic and how do you feel on it? Its causing me problems going to sleep.

Jun 1, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you Katherine! my name is Angie and I just turned 46 in April. I have benign tumor in my left temporal (since it is in my speech and comprehension area) they will not remove it so I was put on a trial study 8 years ago with a pacemaker that was placed in my skull, this has been a long journey for as well as having a hard time with side effects of seizure medications. When i was diagnosed a couple months ago with bronchiectasis and MAC infection, this was even more devastating and shocking than dealing with my brain surgery and tumor!! They think I may have developed the MAC from “aspiration”, but of course don’t know for a fact. What is so strange is i’ve had this clear constant runny nose, daily coughing and fatigue for the last 3 to 4 years which I assumed was a side affect of a new seizure medication i had started. So I just don’t know if i should try and come off this seizure medicine and see if these side affects go away or did it just happen coincidentally at same time? I had started the 1st antibiotic almost 2 weeks ago and it is causing me problems with sleep and don’t know if i should see if i will get use to it or try another kind of antibiotic, but my body is so sensitive to all medications so i believe i’m going to have a problem with any med!?
It’s been interesting listening to everyone else with the same similar problems!! Hope you have a good day!

May 30, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you for your information! I hope you stay well and able to stay active for as long as you can! so you are not going to take any antibiotic at all to get rid of MAC?

May 30, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I know it is so confusing when you don’t know exactly how I got this. They say that it is the MAC infection is what may have caused the bronchiectasis or vice versa? The doctor says some people can live with the MAC infection without taking an antibiotic if they aren’t having any symptoms that bother them. But yet they say that the infection can cause your lungs to worsen, so why would they let people live on with the infection without treatment? The doctor told me they would have to watch you on a regular monthly basis & CT scans to make sure it hasn’t gotten worse.

May 26, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you for your insight! I don’t know if this treatment would be worth it! hope you stay as healthy and strong as possible!

May 26, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Me too! I was just diagnosed February 28th 2017 with Bronchiectasis and MAC- just starting 1st antibiotic and having problems! (but of course i have other healthy issues such as epilepsy and antibiotic doesnt work well with these seizure meds) Wish you all the luck you will need! stay strong!