Stacci I can understand a lot of what you are going through although mine "supposedly" is coming from my cervical fusion being crooked (cervical torticollis) causing huge knots both left and right side of neck. I have had the pain and burning in shoulder blades, neck, shoulders, base of skull all the way up back of head to front. Also, fullness in the ears and "TMJ-like" pain in the right jaw from C8 nerve irritation.
My daughter is going through many symptoms like you are and has cervical problems but the migraines recently are more severe and very persistent affecting her vision, ears, balance, etc. Botox has helped my migraines (hers not as much) plus chiropractic to break up the muscle knots (no oral medications or TENS helps). Same with my daughter.
The migraine medications don't seem to help. A new medication my daughter stated is coming out in June; her neurologist would like to try it on her. She and I also have the optic migraines, but I never had the pain like she gets, just vision problems.
She would like to get a MRA to check the arteries in the brain for any problems contributing to the severe migraines. The MRI doesn't show this. At this point, her neurologist is uncertain if her migraines are related to her cervical problems. The neurologist she sees is the doctor who helped me.
I suffered for a year with migraines and my doctors just looked at the knots, injecting kenalog into them. Did nothing! The Imitrex shots helped somewhat but botox every 3 months is correcting my deviated neck and the massage from the chiropractor (go weekly and his manipulation) breaks up the neck spasms (knots) to decrease the severity and number of migraines. My daughter's botox shots are injected at sites different than before plus now the chiropractor. Acupuncture has been suggested also.
Don't know if you see a neuro-opthamologist, but is an excellent for optic migraines (affecting vision) and has many helpful suggestions. My daughter was getting a very bad, dry eye with her optic migraine and needed a plug put in her tear duct. ? if it will help long term. The best for you Staci and hope you find the help needed!