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Jul 7, 2017 · Treatment for chronic epstein barr in Infectious Diseases

Thanks for mentioning LDN therapy. I am looking into it. I thought the info about endorphins on the lowdosemaltrexone.org website was really interesting.

Jul 7, 2017 · Treatment for chronic epstein barr in Infectious Diseases

It does sound similar. I don’t have all of the issues you have but the recurrent infections is very familiar. (I am pre-diabetic and have sleep apnea)

I have to say that despite the last year being extra difficult, I just had a great month. I traveled to Europe wtih my family and was blessed with energy to make it through the trip. I don’t know what to ascribe it to . . . many, many prayers by myself and on my behalf, more vitamin D, sweating out impurities, walking tons (which usually takes me down fast), the vitamins I started taking before and during my trip (I followed mostly what jenchaney727 posted above as well as liquid coenzyme Q–Costco sells this at a good price–Fish oil supplements–Wild Alaskan Salmon Oil–also at Costco, and a good probiotic.) Maybe it was all of the above. Who knows. It has helped me to build up my stamina and now I can excercise low/moderate intensity for much longer (30-60 minutes) without it making me sick.

I also looked at the reply posted below by akhippiechic and read about LDN therapy. It talked a bit about how endorphins help the immune system. Maybe the excitement of traveling did something too. I don’t know, but I am making a point of getting outside daily, getting more exercise and trying to find ways to enhance my endorphins.

I know there are plenty more ups and downs ahead, but at least I am on a good track for now. I hope this helps and I am sorry about your suffering. It is so hard to find a dr. who understands. I haven’t found one yet. I guess that is why we have to support each other.

Best Wishes,

Julie

May 1, 2017 · Treatment for chronic epstein barr in Infectious Diseases

I would love to know what the specific supplements/treatments are that people have tried.

May 1, 2017 · Treatment for chronic epstein barr in Infectious Diseases

Hi Everyone, I am at the beginning and yet middle of my journey. I had mono when I was 20 and have struggled with severe fatigue off and (mostly) on again ever since. I have been repeatedly diagnosed with depression because of the fatigue. Finally, 3 years ago, my dr. decided to run another mono test and sure enough, I had a current or recent infection. Fast forward to last week. I have moved across the country and am now with a new dr. I finally decided to ask for another mono test and sure enough, again, I tested positive for a current or recent infection. For me, it makes sense of my 26 years of fatigue. Now I am hoping to figure out what I can do to somehow recover from/mitigate this frustrating pattern.