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Aug 15, 2017 · 68Ga DOTATATE Positron Emission Tomography (PET) Now at Mayo Clinic in Neuroendocrine Tumors (NETs)

Hi John: I opened your site and it does say that the patient will be responsible for anything that Medicare does not cover. The problem is that they really don’t explain their position fully. People with Medicare think that they are completely covered and then are hit with a big bill. Even when my husband called them, and he is fully aware of their policy, they didn’t know how to explain it to him. Anyway, hope your info also will be helpful to anyone interested in Mayo. Thanks.

Joan

Aug 15, 2017 · 68Ga DOTATATE Positron Emission Tomography (PET) Now at Mayo Clinic in Neuroendocrine Tumors (NETs)

Hi Teresa: I know the GA68 is available at Mayo, but unless they’ve changed their policy, please be aware that if you go there you may have to pay an additional fee. I talked to them before I went to Moffitt for my scan and they will tell you that they accept assignment, but that’s not entirely true. They do accept assignment from Medicare, as far as what Medicare will pay them, but they do not accept assignment from Medicare for the entire fee. You are left with the balance. This happened to my mother-in-law when we took here there for some sort of scan. She was left with a residual bill. Unfortunately, we didn’t understand their protocol and we were left with a hefty bill. Just wanted to make all aware of this. Be very careful if you go to Mayo that you completely understand their policy. It’s a little confusing. Hope this will help to clear up some misconceptions regarding Medicare and Mayo.

Aug 13, 2017 · new member and NIH clinical study in Neuroendocrine Tumors (NETs)

Hi Faith: I went to the NIH in April, 2016. My mom never went there. She died at age 89 of a small bowel blockage which turned out to be carcinoid. She never knew that she had any kind of tumor. She had no flushing or pain, although she did suffer from palpitations, probably afib. As carcinoid was listed as a “cause of death” on her death certificate, the NIH decided to take me for their clinical trials. I have not returned to the NIH as I live in central Florida, so this year I had my GA68 done at the Moffitt Cancer Center in Tampa. I see Dr. David Metz at the University of Pa. in Philadelphia on a yearly basis, and have not been on any medications so far. Let me know if I can help you in any way. Best to you and yours.

Joan

Aug 12, 2017 · new member and NIH clinical study in Neuroendocrine Tumors (NETs)

Hi Faith: I was at the NIH last year for their familial carcinoid study, as my mother had carcinoid also. The study lasts about four days. They do about four scans, with the Gallium 68 being the last one. They like to compare the scans to see how much more the GA68 shows – and it does, and it did in my case. It is by far the most sensitive scan out there today. Everything is free, including the lodging for my husband while i was there. The people are super nice and after you complete the protocol you and all members of your family can be evaluated by the NIH for free. I did it not only for their research, but also to assure my family’s inclusion at the NIH in the future if necessary. Let me know if you need any contact information. Good luck to you and yours.

Joan

May 10, 2017 · Sciatica pain in Chronic Pain

Very interesting predictable. I think half the battle is getting the rigjt diagnosis. If this second shot doesn’t work I think I will find a good neurologist for a second opinion.

May 8, 2017 · Sciatica pain in Chronic Pain

Hey predictable. Thanks for the interesting and informative info on ART. Got a second shot today so we’ll see what happens. Am going tp PT and will definitely try ART. I think ART can help get to the root of your problems by releasing your muscle spasms and breaking us the scar tissue. Will keep you posted. Take care.

May 8, 2017 · Sciatica pain in Chronic Pain

Thanks sandytoes. Am reading articles like yours and finf some good info in them. Am also looking into ART therapy. Started PT and am hoping for the best outcome. Thanks again.

May 8, 2017 · Sciatica pain in Chronic Pain

Hi Pat. So glad you were able to get relief from your pain. I had my second steroid injection today into the piriformis but don’t have very high hopes regarding the pain reduction. I had this condition before, and like you, had a piriformis injection and received very quick relief. That is why I choose again to have a piriformis injection rather than an epidural. I started PT and hopefully this will give me some relief. I’m also interested in Active Release therapy and need to find a really good massage therapist that does this. I’m hopeful that eventually I will get some relief as you did. Take care and stay well.