Hello barbararene…this is Joe (Mach92). I’m sorry you had a relapse. When were you diagnosed with PMR? I assume you had all the required blood test testing your inflammation markers? BTW, when I was diagnosed, ALL my blood test were normal. I sure didn’t feel normal.
Last March I also had a relapse after reducing from 15 to 2.5mg of Prednisone over a 17 month period. Like you, I thought I was in remission. Ironically I was at the Mayo Clinic at the time for second opinions. The Mayo rheumatologist suggested I go back to 7.0mg, since I had just reduced to 2.5 a few days earlier. However, 7.0mg didn’t help and I ended up starting over and going back to 15mg. BTW, once I returned home and visited my local rheumatologist, he put me on 40mg of Tramadol….my first time. I was having difficulty sleeping through the night as I would wake up in a lot of pain and unable to get back to sleep. It did help!
Since March I’ve been trying to reduce my dosage of prednisone 2.5mgs at a time at 3-4 week intervals. My doctor gave me the green light to adjust up or down at my discretion. I am currently on 10mg and hope to reduce to 7.5 in two weeks. BTW, there were times I did have to increase the dosage. So it’s been somewhat of a roller coaster ride for me. Presently (knock on wood) I am doing OK on 10mgs. I see my rheumatologist on Monday.
Unfortunately everyone with PMR will have a relapse at some point. I can’t tell you to increase your medication, only tell you what worked for me. I would encourage you to stay active, walk your dog daily…..it does help.
I’m sure John will reply as well. He is a wealth of knowledge and an inspiration!