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Mon, Feb 18 11:42am · Parsonage turner syndrome * in Brain & Nervous System

Have you had your thymus imaged. Strange as that sounds when the doctor discovered that I had a thymoma and it was removed my
Pts resolved. Thymoma is often related to autoimmune issues, though there are no studies with respect to pts.

Mon, Jan 28 7:07pm · Parsonage turner syndrome * in Brain & Nervous System

I know I've said this in the past (and it did help one other person) but my strange Parsonage symptoms resolved when my thymus was removed. It's a very obscure organ but seems related to several rare auto- immune conditions. I had a thymoma, which is cancer of the thymus. A simple x-ray image of the thymus would rule that out.

Sun, Jan 27 3:12pm · Parsonage turner syndrome * in Brain & Nervous System

Has the pain been continuous for 9 weeks? Have you been to a neurologists?

Sun, Jan 27 3:12pm · Parsonage turner syndrome * in Brain & Nervous System

For what it is worth, my parsonage Turner was apparently directly related to something called a thymoma, a very rare form of cancer. It is quite treatable when caught early. You may want to mention that they should image your thymus. The oncologist at Penn see these two conditions so rarely there is no medical information available and so there are no studies endorsing any form of correlation here. But thymoma is typically related to an autoimmune condition, and parsonage Turner is just such a condition. The chances may be small, but it was what was causing my condition. Once the tumor was removed the pain was gone.

Sun, Jan 27 3:12pm · Parsonage turner syndrome * in Brain & Nervous System

Thanks very much. It’s two years tobthebweek when I was going in for shoulder surgery to take care of this pain and Penn discovered instead that I needed a new aortic valve and had a thymoma. Big change of plans there!

Dec 11, 2018 · Thymoma B3 in Cancer

Number was treated with surgery and then proton therapy. have they investigated whether proton therapy can be used to shrink the tumor?

Oct 27, 2018 · Parsonage turner syndrome * in Brain & Nervous System

Mine hit me had as well. I was working out 5 or 6 times a week. Have you tried physical therapy? They helped me find movements I could do. Ultimately my doctor's diagnosed me with thymoma which is a rare cancer often associated with auto immune conditions. The removal of that time really seems to have resolved things but I still have a small deficit.

Oct 19, 2018 · Parsonage turner syndrome * in Brain & Nervous System

I have to say it but my pain lasted only 1 week. But it was so intense I had to be in a morphine drip. Lyrica worked a bit as well. It is nerve pain so opiates can only knock you out. Neurotin and Lyrica may be your best bet. I can't comment on coping it other alternative treatments.