i have been trying to schedule for pulmonology at Mayo Rochester and they are also booked way out and said I just needed to call daily to see if anything opens up!!??
Member has chosen to not make this information public.
Member not yet following any Groups.
Member not yet following any Pages.
Hi Colleen, Thank you for your reply. I am just wondering what percentage of people with bronchiectasis have or develop MAC as that is what is most of the posts are about. I have some sputum production but very seldom and no other symptoms that I can tell. No testable decreased pulmonary function. Am on nebs and aribika now. Had second Ct scan that shoes bronchiectasis with numerous mucous areas and one nodule that they are following for changes. Does that mucous sitting down there create infection that doesn’t create overt symptoms? I have tried to get ahold of my clinic to clarify things but they are not responding and I won’t be seen for 3 to 6 months. I am registered to eventually come to Mayo but was going to wait til fall. Now think I should try to get in sooner. Just presenting the thoughts that roll through my head. Thanks for this site and listening.:)
Thank you for your reply. I do know I have widening of my bronchial tree and therefore collection of mucous but don’t know if I have infection. I have very few symptoms and my lung function is normal. I do cough up sputum sometimes and am now on nebs and aerobika to treat that and induce sputum. I have signed up with Mayo to get a second opinion but due to volume can’t get in for awhile. I guess I am wondering if I’m festering infection that I don’t know about and should be treated. When I was last in pulmonary clinic, they did induce a little sputum so I should get a read on that soon. However, it seemed more like saliva to me. I realize I am kind of rambling here. Just am glad to have a place to do that about this problem. Thanks.
I was diagnosed with this in January. Had pneumonia in November. My dr didn’t tell me to get a sputum sample til my second visit this past week. He started me On nebs and aerobika treatment. I had a second Ct scan and am not sure if there were changes. Does bronchiectasis and MAC go together. It seems like most people here talk about MAC and not bronchiectasis?
I was recently diagnosed with Bronchiectasis post pneumonia. I have no to few symptoms (very occasional productive cough). No sputum culture yet. Had second CT scan last Friday, definitive results not in. Pulmonologist started me on Hypertonic saline with albuterol nebs and flutter device twice a day to try to induce sputum. Will start today. Would like a second opinion at Mayo with pulmonologist specializing in Bronchiectasis. I don’t know if I have MAC as no sputum has yet been analyzed.