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Posts (27)

Nov 18, 2018 · HPV Throat Cancer in Head & Neck Cancer

Unfortunately I am not familiar with this type of cancer. My cancer was removed surgically and did not require chemo or radiation. Mine was a very rare form and less than 200 case had ever been reported of laryngeal chondrosarcoma. What I do know is that of all the doctors I went to get opinions only one believed that he could get all the cancer and maintain my functionality; breathing, speaking and eating. Mayo is the only place I found hope and I believed they could help me and I had faith in my doctor. If you are being treated at Mayo you most likely have the best care anyone can provide. My thoughts and prayers are with you in your journey.

Oct 17, 2018 · Trach after esophageal cancer in Head & Neck Cancer

I strongly recommend a second opinion and I would suggest you visit Dr. Eric Moore. I had a very rare form of cancer called Laryngeal Chondrosarcoma which paralyzed one of my vocal cords and blocked 90% of my esophagus. I had a trach in during numerous surgeries and was finally able to have it removed. My voice is different, I can swallow and breathe st 50%. Dr. Moore was a blessing along with his entire team at Mayo! Jeff

Aug 23, 2018 · Melanoma of esophagus in Head & Neck Cancer

I was diagnosed with a rare form of cancer Laryngeal Chondrosarcoma that threatened my speech and ability to eat and breath. I traveled the country and of the 7 surgeons I visited, Dr. Eric Moore at Mayo Rochester was the only one who was confident that he could remove the entire tumor and save my functionality which he ultimately did. I strongly urge you to make the journey and get another opinion.

Aug 16, 2018 · Diagnosed with sarcoma? Let's share in Cancer

Hello Deb, I hope that this note finds you in great health! My wife and I were at Mayo on Monday for my first full year annual check-up and I am delighted to report that I ma totally cancer free, the reconstruction sight looks pristine and there has been no shrinkage at the sight as well. I am exercising and running and having the time of my life with our grandchildren. I look forward to hear of your progress and wish you well. Your fellow survivor and thriver, Jeff

Apr 17, 2018 · Diagnosed with sarcoma? Let's share in Cancer

Deb, Hope this finds you well and look forward to learn how your recovery continues to progress. On April 12th Mayo published an article concerning my journey and I wanted to share it with you. The following link will take you to the sight; the article is titled “Retaining His Voice With Radical Treatment” https://sharing.mayoclinic.org

Feb 19, 2018 · Diagnosed with sarcoma? Let's share in Cancer

Hello Deb, this past Saturday, February 17th was the one year anniversary of having my trach removed. Truly a celebratory day, however it was definitely overshadowed by our grandson's church/school fund raising pancake breakfast. I hope that your speech therapy sessions are having the desired outcome. Sounds like the walking should also help with your breathing. Wishing you continued success on the journey to redefining the new normal as they call it!

Jan 11, 2018 · Diagnosed with sarcoma? Let's share in Cancer

Deb, Hopefully you have had joyous Holiday season as we both have much to celebrate. I wanted to wish you a Happy and Joyous New Year’s filled with great health. I am also curious to see what you have been doing with speech therapy. My voice is continuing to get stronger and I am still running, all good! Have a great day, Jeff.

Nov 6, 2017 · Diagnosed with sarcoma? Let's share in Cancer

Hello Deb,
How did the six month scan go and what did you learn from the speech therapist? My voice is variable, good days, OK days and not so good days. The good news is that we still have our voices whatever the volume level. I am always glad to hear that you are doing well and fighting the good fight. Have a great Thanksgiving Holiday as we both have much to be grateful for! Jeff