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2 days ago · Do your symptoms come and go while on the Big 3? in MAC & Bronchiectasis

What is the difference between an exacerbation and a flare-up and do you have them on and off while on the Big 3? I have been on the meds for 2.5 years and can go months feeling wonderful and then just like that all of my MAC symptoms (terrible nausea, night sweats, body aches) return for days to weeks. I'm worried that the meds aren't working and that the MAC is still growing. Any thoughts?

3 days ago · Should Tylenol, Ibuprofen or Aleve be avoided while on the Big 3? in MAC & Bronchiectasis

I am on the Big 3 (Ethambutol, Rifampin and Clarithromycin) for MAC and I am wondering if anyone has been told to avoid either Tylenol, Ibuprofen and/or Aleve while on the medications? I don't want to compromise the effectiveness of the antibiotics. Thank you in advance!

3 days ago · I am new to Mayo and have my first appointment on Aug 5th. in MAC & Bronchiectasis

@windwalker Can I ask what your treatment was that was so successful for you, which is great by the way!

Mon, May 27 11:51am · Turmeric for inflammation with MAC in MAC & Bronchiectasis

I have MAC and am on the Big 3 antibiotic regimen. I'm wondering if anyone's doctor has told them to take turmeric for inflammation, or have been told NOT to take it for any reason? I wouldn't want to take any supplements that will make the antibiotics less effective. I learn so much on this forum; thank you for your input!

Wed, Apr 24 8:10am · Is NTM found in lawn soil? in MAC & Bronchiectasis

I'm wondering if anyone has been told by their Dr that NTM is found in the dust created by mowing the lawn? If so, will using a dust mask be enough protection (and which kind of mask) or were you told to stop mowing all together? I live on a farm in MN and have a huge yard and this is one chore I love to do!

Thu, Feb 28 11:23am · Are Nebulized saline and Aerobika beneficial? in MAC & Bronchiectasis

I have MAC and a modest case of bronchiectasis. I rarely, if ever, cough yet was started on the nebulized 3% saline and Aerobika 3 months ago at my request, hoping to be able to produce sputum for periodic testing to see if the antibiotics are working. I have not yet coughed up anything. I'm wondering if it's beneficial to continue with this practice anyway? Or is the Aerobika aerating my lungs to dislodge the MAC so the antibiotics can work better, even if I'm not producing sputum?

Oct 22, 2018 · Are all of you NJH patients with MAC doing pulmonary hygiene? in MAC & Bronchiectasis

@alleycatkate Which Dr do you see at Mayo? I am so surprised my pulmonologist there says I don't need either the Aerobika or nebulizer. I think I am going to insist on it.

Oct 20, 2018 · Are all of you NJH patients with MAC doing pulmonary hygiene? in MAC & Bronchiectasis

@windwalker Thanks for your always informative info! I'm wondering how you inhale saline, or is that what the Aerobika is used for? Or is it put in a nebulizer? I will be asking about this at my next appointment. Also, which doctor do you see at Mayo? I keep reading about Dr. Aksamit and wonder if I should consult with him also. I see Dr. Clain, who is a wonderful pulmonologist; although I'm not sure if he "specializes" in MAC or not.