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Mon, May 27 11:51am · Turmeric for inflammation with MAC in MAC & Bronchiectasis

I have MAC and am on the Big 3 antibiotic regimen. I'm wondering if anyone's doctor has told them to take turmeric for inflammation, or have been told NOT to take it for any reason? I wouldn't want to take any supplements that will make the antibiotics less effective. I learn so much on this forum; thank you for your input!

Wed, Apr 24 8:10am · Is NTM found in lawn soil? in MAC & Bronchiectasis

I'm wondering if anyone has been told by their Dr that NTM is found in the dust created by mowing the lawn? If so, will using a dust mask be enough protection (and which kind of mask) or were you told to stop mowing all together? I live on a farm in MN and have a huge yard and this is one chore I love to do!

Thu, Feb 28 11:23am · Are Nebulized saline and Aerobika beneficial? in MAC & Bronchiectasis

I have MAC and a modest case of bronchiectasis. I rarely, if ever, cough yet was started on the nebulized 3% saline and Aerobika 3 months ago at my request, hoping to be able to produce sputum for periodic testing to see if the antibiotics are working. I have not yet coughed up anything. I'm wondering if it's beneficial to continue with this practice anyway? Or is the Aerobika aerating my lungs to dislodge the MAC so the antibiotics can work better, even if I'm not producing sputum?

Oct 22, 2018 · Are all of you NJH patients with MAC doing pulmonary hygiene? in MAC & Bronchiectasis

@alleycatkate Which Dr do you see at Mayo? I am so surprised my pulmonologist there says I don't need either the Aerobika or nebulizer. I think I am going to insist on it.

Oct 20, 2018 · Are all of you NJH patients with MAC doing pulmonary hygiene? in MAC & Bronchiectasis

@windwalker Thanks for your always informative info! I'm wondering how you inhale saline, or is that what the Aerobika is used for? Or is it put in a nebulizer? I will be asking about this at my next appointment. Also, which doctor do you see at Mayo? I keep reading about Dr. Aksamit and wonder if I should consult with him also. I see Dr. Clain, who is a wonderful pulmonologist; although I'm not sure if he "specializes" in MAC or not.

Oct 17, 2018 · Are all of you NJH patients with MAC doing pulmonary hygiene? in MAC & Bronchiectasis

I'm wondering if all of you NJH patients with MAC are instructed to use an Aerobika for pulmonary hygiene even if you do not have a chronic cough? My Mayo clinic pulmonologist says I don't need to use one as I do not cough so there would be very little benefit of using one. I realize NJH is the top clinic for MAC so I'd like to know what their doctors suggest.

Oct 17, 2018 · Has anyone ever been cured of MAC? in MAC & Bronchiectasis

Has anyone ever been cured of MAC? Or even for at least 20 plus years?

Jul 3, 2018 · Symptoms of tingly arms, hands, feet and calves in MAC & Bronchiectasis

@windwalker, @jkiemen, Yes they are doing a suseptibility test and I am waiting for it to come back. I am actually just as concerned now with the neuropathy that I am having in my feet and hands. I assume it was caused by the ethambutol. I quit taking it 2 months ago and the neuropathy seems to be getting worse. Has anyone had this happen? If so, has anyone had it go away in time?