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Posts (8)

Sep 2, 2018 · Treating Osteoporosis in Bones, Joints & Muscles

Let me throw in my two cents worth on Prolia. I was diagnosed with breast cancer 2-1/2 years ago. After surgery and radiation I was put on Arimidex to hopefully prevent a recurrence of my hormone receptive positive breast cancer. Because this drug depletes calcium in the body, and the fact that I was already showing signs of osteoporosis, I was also put on Prolia. I have had five shots. I recently discontinued taking the Arimidex because of the side effects and therefore my oncologist decided I no longer need any more Prolia shots. It’s hard for me to say which side effects came from the Arimidex and which came from the Prolia, but I definitely experienced a wide range of side effects. I’m all for doing whatever it takes to stay alive and healthy but, my experience with these two drugs detracted far too much from my current quality of life. I realize I’m not going to live forever and I want the best possible day every day that I am alive. For the record, my side effects included weight gain, joint pain, joint weakness, an occasional weird rash, digestive issues (don’t ask), insomnia, hair thinning, mood swings, leg cramps, swelling in feet and hands (had to get my rings sized and buy a size larger shoe), hot Flashes/Cold Sweats. . . (Maybe a few others that escape me now). I think you can see why I chose to discontinue use. My surgeon and my oncologist have been very supportive of this decision.

Jul 13, 2018 · Concern over MRI dye in Breast Cancer

Of all the issues that came along with my lobular carcinoma diagnosis, the MRI dye was among the least of my concerns. I wish everyone dealing with this disease strength and positive support as they make their way to being survivors. I'm not going to worry too much about the MRI dye concern.

Dec 28, 2017 · Concerned about the side effects of anastrozole in Breast Cancer

I have a question for those of you who have taken Anastrozole and are now finished (or quit early due to side effects). Did you find the side effects went away after you stopped taking the medication? In particular, I’m questioning the weight gain, the hair thinning and the achy, stiff joints. I also get a shot of Prolia twice a year for osteoporosis so I don’t know if that will impact the results. I have been on the Anastrozole for twenty months.

Aug 14, 2017 · Switch from Arimidex to Femara (also known as letrozole) ? in Breast Cancer

I am in the same boat here. After 16 months on Arimidex, my doctor suggested a change to Femara if I wanted it after my complaints about various side effects. I haven’t made the switch yet. My thoughts at the moment are that it’s better to deal with the enemy you know than to deal with the enemy you don’t know. If it’s just going to be more of the same issues, I’d rather just tough it out. There have been a merry-go-round of side effects – some come and go; others come and stay. I know I’m lucky to have caught this early and my prognosis is exceptionally positive (or so they keep telling me) but I can definitely join the crowd that would rather not have to deal with these wacky side effects (so many, so different, so annoying). I will be following the thoughts on this topic

Jul 24, 2017 · Seeking Qualified skilled Surgeons in Breast Cancer

I was fortunate enough to live in a city with a world-renowned medical community. Pretty much any issue I would ever have can be dealt with here. When my mammogram showed something suspicious, my ob/gyn recommended a team with a stellar reputation. I was very fortunate to have a strong, competent team of health care professionals. I will say, pick a breast surgeon specialist, not a general surgeon. The specialists have dealt with so many cases – they will know best how to give you the best outcome in terms of your appearance after surgery and how best to treat the cancer and, hopefully, eliminate it from your life forever. Because of the choices i made, I can honestly call myself “lucky” as I’ve gone through the last year and a half since my diagnosis.

Jul 4, 2017 · Treating Osteoporosis in Bones, Joints & Muscles

I have had three Prolia shots to date. I can’t really identify any side effects that I attribute to the Prolia. I am also taking Arimidex (fifteen months now) as follow up treatment for breast cancer, so it’s hard to always know where to place the “blame” when something goes out of wack. The Arimidex has the possible side effect of causing or aggravating osteoporosis, which I was diagnosed with right after my breast cancer surgery, when they put me on the follow up drugs. I am doing everything I can to rise victorious over all of this. I’m 60 years old, but in my mind I’m still 35. I am not giving in easily to age or illness.

Jul 4, 2017 · Concerned about the side effects of anastrozole in Breast Cancer

Fifteen months on the Arimidex. Gained twenty pounds – but really starting to fight back now. Assorted other side effects that come and go – I can deal with that. Major concern is hair thinning. Everyone (husband included) keeps telling me it’s my imagination. It’s not, but I could live with this level of hair loss if it stops here. Some are indicating that things seem to level off after six months or so on Arimidex. If this is my new normal, I guess I’m okay with that. I enjoy the feedback on this site. I wish everyone here the best of luck as they go forward.

Apr 18, 2017 · Concerned about the side effects of anastrozole in Breast Cancer

I was treated for Invasive Lobular Carcinoma of the right breast fourteen months ago. I had a lumpectomy and 20 radiation treatments. I have been on Anastrozole for one year now. Some aches and pains that I can live with. Some weight gain which I am fighting. Main concern is the thinning hair. Does anyone have longer term experience with that issue? If it stopped right now, I could live with it. I’m just afraid of what will happen in another year or any time between now and four years from now when I expect to be finished with this. Any success in fighting back against the hair loss? I have researched but dont really know if there’s a good answer out there that won’t cause some other issue.