Good Morning: New to the group wish to share personal experience with BRONCHIECTASIS.
Bronchiectasis would first introduce itself to me as a 28 year young Mom just 3 months
shy of giving birth to my second Child. Three years of respiratory infections, non productive
cough and repeated hospital admissions for ” pneumonia “, diagnosis would be confirmed
when an experienced Physician who was only known to me because of so many Emergency
Room visits, spoke to my Husband with respect to what he believed warranted further respiratory
investigations to accurately define what was causing these reoccurring Pneumonia’s.
The end result … Bronchiectasis, with severe damage to the right lung. A right middle lobectomy
would give me my life back with only one Respiratory hospital admission in 20 years.
In 2006, I would become symptomatic of this Disease again. Repeated respiratory infections, non productive cough and the familiar associated Lung pain is dictating my life once again some
36 years later. Thought to be a hands on educated glass half full kind of person with respect
to my Disease, the medical team who have guided me on my Respiratory journey, have since retired or have passed on. Enter a new medical Team. Young textbook smart recent Graduates in the field of Medicine has created a new symptom to my respiratory treatment plan … Fear!
Bronchiectasis patients should not all be treated with the same brush. I have spent the last
two years of valuable time defending my symptoms, my personal respiratory experiences including
the rationale behind the right middle lobectomy and the existing treatment plan designed
for me by Respiratory Physicians at a Hospital in London, Ontario, Canada. New knowledge
of the risks associated with the long term use of Antibiotics, the pro’s and cons of Arosols
versus multi doses of Puffers during flare ups and the precious success of preventative
measures to reduce inflammation and trapped mucous plugs and the accompanying
Lung, rib cage and body pain associated with excessive coughing, inflammation, scaring
pockets of atelectasis and from diffused bilateral Bronchiectasis has left me exhausted
physically and emotionally. It is difficult enough to co exist with Bronchiectasis. The
one size fits all approach to treating Lung Disease dictated by my new Physician,
has come with a price. THE LOSS OF MY QUALITY OF LIFE!
Thank you for letting me vent. A Mom and Grandmother I tend not to share with them
the day to day challenges of living with Bronchirctasis. During flare ups they worry
enough about my care. I will find my strong self again and I give myself permission
to sit for a moment in feeling defeated for the first time in the 36 years of living with
Bronchiectasis. In my 65 years I know not to define all Physicians by the
mis-guided actions and personal bias of another.
Blessings to fellow Respiratory patients.