My problem is that I moved from Atlanta where I had been diagnosed and treated until I moved to Florida. I live in a small tourist town with few doctors that specialize in this type of Lupus. The only one locally doesn’t take my insurances and I am not able to cover the uncovered expenses so I am back to looking for someone once again. I am so happy to have found this site. It has been wonderful to find others who has the same symptoms or even understands what it is like to be dealing with this rare form of Lupus. It seems that each of you all also have multiple other serious health conditions that you are also dealing with. The pain, the fatigue, the skin issues, the headaches, etc, etc. It finally seems to me that there are some common denominators we all share and leaves me hopeful our stories will help find answers about this disease. Yes, I do agree with the theory of staying away from pain meds, but this has been a 40 year battle for me and to just be able to walk I have no other options left anymore. I have been told my only other option would be a Spinal Cord Stimulator and I may have waited to long and don’t know where I would find a doctor like I had in Atlanta. But, yes regardless of the symptoms we do have to keep moving. I am also going to look into contacting the Florida Mayo Clinic to see if they can help. Please take care everyone and stay strong and please keep sharing, you don’t know just who you might be helping!