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Posts (2)

Apr 14, 2017 · CISP Chronic Immune Sensory Polyradiopathy in Autoimmune Diseases

Thanks @johnbishop and @kanaazpereira. I will have a look at the articles. The effect of this condition is that for many years, I could not feel my legs or feet. This creates walking and balance issues. I was referred by my local physician to the Mayo, After a battery of tests, Christopher Klein provided a diagnosis. I am receiving IVIG and things have improved. For many years, my company’s health insurance paid the bill. Now that I am retired, the issue I am facing at this time is getting Medicare to pay for the nurses who need to come out and administer my treatment. Medicare Part D will pay for the medication ( although my portion is still a large expense) but for some reason, Medicare doesn’t want to pay for the nurses. It is not a medication that you can administer yourself. I continue to explore options. I was hoping that someone out there had been through this and has Medicare tips.

Apr 13, 2017 · CISP Chronic Immune Sensory Polyradiopathy in Autoimmune Diseases

Has anyone out there been diagnosed with this?