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Apr 11, 2017 · #MayoClinicHeartChat about Hypertrophic Cardiomyopathy & Genetics in Hypertrophic Cardiomyopathy (HCM)

My family and I did the gene testing at Columbia NYC. out of 7 of us 4 are HCM positive 3 do not carry the gene, Out of the 4 with HCM 2 (incliding myself) have heart transplants and are doing wonderful. My question is. If you show negative in the gene test, does that mean the HCM gene stops there with that person and can not be carried down to there children ? We have 13 neices and nefews and sadly to say lost one at the age of 24 due to HCM (we carry sudden death) Those who are positive had our children tested my son as well who now has a defibulator even thouh he shows no signs. We were told the children who are positive should do invetro to stop the gene And those who are negative do not need to worry for the gene can not jump a generation.For those who are wondering if gen testing should be done for your family I highly recomend it. Knowlege is everything and prevention is the best way to go. Thank you for your time