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I actually see Dr Coterlan for my HCM and then my 15 year old daughter was Dx in January and she see Dr Eric Edens. Both have been fabulous so far. I have four children total and just found out this week that 3 out of the 4 have the gene and one is symptomatic. We have an appointment at the end of the month and will ask to be set up with a genetic counselor as I would like to know more Have you seen a genetic counselor yet?
Hello. I am a mother who was diagnosed with hcm 4 years ago and now my 15 yr old daughter has been diagnosed with hcm. Which was confirmed with genetic testing. I also have three other children which 3 out of the 4 have the hcm gene and one is symptomatic at this time. I would like to see if there are other families like us out there and just find out how they helped their child deal with this diagnosis. It has been very difficult for my daughter and just looking for some advice. Thanks