Badges ()

About

Member has chosen to not make this information public.

Groups

Member not yet following any Groups.

Pages

Member not yet following any Pages.

Posts ()

Apr 5, 2017 · Hcm in teenagers in Hypertrophic Cardiomyopathy (HCM)

Thank you I plan to attend.

Apr 2, 2017 · septal myectomy and mitral valve repair in Hypertrophic Cardiomyopathy (HCM)

Good to know. I am just to the point of constant dizziness and have not fainted yet so hopefully that is awhile for me. Best of luck and thank you answering me.

Apr 2, 2017 · septal myectomy and mitral valve repair in Hypertrophic Cardiomyopathy (HCM)

Not yet but feeling that time is getting much closer for me as the last increase in medications has not been working so well.

Apr 2, 2017 · septal myectomy and mitral valve repair in Hypertrophic Cardiomyopathy (HCM)

I actually see Dr Coterlan for my HCM and then my 15 year old daughter was Dx in January and she see Dr Eric Edens. Both have been fabulous so far. I have four children total and just found out this week that 3 out of the 4 have the gene and one is symptomatic. We have an appointment at the end of the month and will ask to be set up with a genetic counselor as I would like to know more Have you seen a genetic counselor yet?

Apr 2, 2017 · septal myectomy and mitral valve repair in Hypertrophic Cardiomyopathy (HCM)

I am a patient of the U of I and I am wondering who your cardiologist is ?

Apr 1, 2017 · Hcm in teenagers in Hypertrophic Cardiomyopathy (HCM)

Hello. I am a mother who was diagnosed with hcm 4 years ago and now my 15 yr old daughter has been diagnosed with hcm. Which was confirmed with genetic testing. I also have three other children which 3 out of the 4 have the hcm gene and one is symptomatic at this time. I would like to see if there are other families like us out there and just find out how they helped their child deal with this diagnosis. It has been very difficult for my daughter and just looking for some advice. Thanks