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Posts (3)

Mar 30, 2017 · Burning Mouth Syndrome. I have it very severe. in Skin Health

Thank you very much… We have used the mouth was and the mouth spray and it is quite helpful to my husband. You can bet I will be getting him some of the toothpaste and the lozenges asap!!! Again… thank you!

Mar 27, 2017 · Burning Mouth Syndrome. I have it very severe. in Skin Health

Thank you so much for the input! Excellent idea about the toothpaste… I will do that immediately. We are in a Rehab Center (due to hubby’s nutrition being severely impacted by a swollen, painful tongue) and they do have him on Magic Mouthwash… and I think it does help. As to the oral surgeon… we did go to one and he said he doesn’t treat TMJ or BMS … then referred us to another dentist that bills himself as a “maxillofacial pain pathologist” … very expensive and takes no insurance. Since we were already with a TMJ “specialist” who is willing to treat the BMS we didn’t go to the “pathologist” yet, but we may HAVE to soon. Not only is BMS starving my little hubby of nutrition, but it’s eating into our life savings also! Again… thank you for answering me. It’s so good to know there are others out there going through the same thing. I don’t feel quite so alone. God Bless you!!!

Mar 27, 2017 · Burning Mouth Syndrome. I have it very severe. in Skin Health

Dear 11camaro… DID GETTING YOUR B-12 AND IRON LEVELS BACK TO ALMOST NORMAL RELIEVE YOUR BMS AT ALL? Your post caught my eye as my husband has taken meds for severe acid reflux and has Barrett’s Esophagus… among other things. He is also a recent cancer survivor and a diabetic AND has this awful condition WITH severe TMJ at the same time. He can eat nothing except milk shake consistency liquids… Not even pureed foods as they are too thick to maneuver over his tongue. He has lost so much weight, the depression is horrible… and he has only had this for only about 4 months!!! Right now he is on B-12 shots and lots of other B vitamins, Gabapentin, and Alpha Lipoic Acid. He must take about 50 pills a day… which is a struggle in itself. So far nothing has helped… but I know it will all take a long time… if it helps at all! Jesus God… we need to do something to draw attention to RESEARCH NEEDED on this miserable, debilitating condition as more and more people will most likely be affected as we continue to trigger it unknowingly !!!