Badges (1)


Member has chosen to not make this information public.


Member not yet following any Groups.


Member not yet following any Pages.

Posts (4)

Mar 31, 2017 · Pulmonary Fibrosis* in Lung Health

I REALLY wish I had been told 16 years ago that I had IPF, instead of 5 months ago!! If it was 16 years after my discovery, I would only be 104, a rather ripe old age, right? 😉 I’m still symptoms free as to cough and winded. But I think about my condition during the day, altho there is as yet nothing to do about it.

Mar 31, 2017 · Pulmonary Fibrosis* in Lung Health

I can’t answer about exercise, as I was accidently found to have IPF last fall, and I am asymptomatic and can still walk 3 miles a day, +/-like I have for a long time. Best of luck.

Mar 31, 2017 · Pulmonary Fibrosis* in Lung Health

Hi Ray,
Tnx 4 that link. Nice to have a group that is only about IPF. Well written, too.

Mar 25, 2017 · Pulmonary Fibrosis* in Lung Health

Hey, Steve48,
I am a newbie to you guyz thread, and the malady. Its terrific to read about your never ending positive attitude, Steve! I was diagnosed with interstatial pulmonary fibrosis after a CT scan in Oct ’16 for a hernia; the scan also revealed fibrosis. I didn’t know about it until I read mychart on the web about interstatial PF on Dec 26,’16. I did as much internet searching as possible about this shocker. Saw our family doc in early Jan ’17. He and I looked at the CT, and I saw those ‘lines’, should I say, at the bottom of my lungs. My research gave me one possible cause: I told doc that for the past maybe 5 years or so I have told friends “I know now how I will die; I will choke to death.” For 5 years I now realize I have been inhaling when shoveling food into my mouth. Once in a while, some must be going down my ‘wind pipe’, and into my lungs, and then I cough very hard for maybe 3′, often leaving the table. Why I inhaled while feeding I have no idea. I now try very hard not to do this, and haven’t choked for 3 months. Since none of us know each other, I will also admit I used to, for maybe the last 15 years, try and keep my weight down by occasionally barfing up meals where I ate way too much, which also occasionally made me choke for a couple minutes. False pride and basic male idiocy overcoming discipline. I no longer accomplish this feat, either. Another aspiration story: I have suffered reflux for more than 10 years. Occasionally I am waked up at 2am by a half teaspoon of hydrocloric acid rising into my mouth, for example. I was never careful about my diet, and used a prescription, tablets and baking soda to hold the reflux down. I am now trying to eat less food at one sitting especially at supper, and less acid causing foods. And I love chocolate, tomato sauce, and all the other Bad-for Me foods. Hoping against hope, some research says aspiration (food getting into the lungs) may be causing some Interstatial PB, and until I am convinced my condition is ideopathic (unknown cause) fibrosis, I’m sticking with my story. 😉 So far, I think I am symptom free. I speeded up the pace of my 3 miles/day walks with no wind problems, plus no cough. But, do any of you have very slight nausea in the mornings, like I do, that goes away after coffee? Not a symptom listed for our malady.

I am glad I am now in this group. I felt better after reading the whole thread. I also feel better that the “wondrous, much better health care bill” failed to even get a vote yesterday. Plus, now they don’t know where the money for the huge tax cuts for the top 1% is going to come from, which the huge ‘great health bill’ money cuts was supposed to provide. (Sorry, I couldn’t help it, folks)