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Aug 10, 2017 · serotonin syndrome in Mental Health

This is my third time of going through this horrible syndrome. I have multiple docs and meds and once again one prescribed something (over the counter) that has made me sick for over two weeks. The latest one was a doc suggested I take some cough medicine after I had sent him a message on his portal. He had a list of my meds, but still told me to take this one, MucinexDM, that put me over the top. I am not the doctor or pharmacist. Why can’t they get this right? I am upset he did this. I am physically and mentally miserable! Has anyone here got any suggestions in dealing with multiple docs and meds to prevent this?

Apr 27, 2017 · Scoliosis - Introduce yourself and meet others in Bones, Joints & Muscles

I would rather not be a part of the discussion because while it is one of my diagnoses, I have no symptoms. I don’t feel I would have anything valuable to this particular discussion. Thanks for the consideration.

Apr 25, 2017 · Carpal tunnel release in Bones, Joints & Muscles

I had carpal tunnel surgery and the release of my thumb which was a trigger finger last Wednesday (six days ago). I have not needed any pain medicine! While the area is sore, I’m careful not to bother it and it leaves me alone. My surgeon did it laparoscopically, which means I have only a one-inch incision and thus a shorter recovery time. The trigger release for the thumb is my second incision but it doesn’t bother me other than being sore. When I came out of surgery my hand and fingers were really numb. It took a couple of days for that to go away. I was told that was normal. I had a large soft bandage covering my palm and wrist for three days. My hand and thumb were swollen so I iced my fingers since they were the only part not covered. Within a couple of days all the swelling was gone. When I took the bandage off last Friday, my hand looked bruised and I had some type of funny shaped scars under the skin of my wrist that felt like pins and needles when I pressed on it. It’s getting less sensitive each day. Also, each day I’m gaining mobility in that hand. At first it was rather stiff. I was told to open and close like I was making a fist and do that several times a day. It helped.

As far as driving, I was driving two days later without much problem. Each day I’ve been able to do more. Now, six days out, I can do almost everything I did before but now with no pain or tingling. I’m very pleased. If I’d known it was this easy I would not have waited.

I am in St. Louis and I had it done here. I have never been to Mayo as all the others seem to have been.

Complicating factors for me were my lupus, fibromyalgia, and the many medications I’m on which include the chemo drug Cytoxan (used for lupus, not cancer in my case).

Mar 26, 2017 · Stills Disease in Autoimmune Diseases

Hi, kanaazpereira. My name is Cathy Hutcherson. I’m very new to Mayo Clinic Connect. Not sure where to go or how to jump in. Any help is appreciated. I also participate in the Lupus Foundation’s Message Board and occasionally on the My Lupus Team website. I find I have some information to share, but my case is different in many ways from those who share on My Lupus Team. The Lupus Foundation’s has dedicated members who have severe lupus as I do.I’ll share some of my history and where I am now. As you know I had/have Stills Disease. My symptoms from that were pretty much over by the time I reached 16. When I was 17 I was diagnosed with bipolar disorder II. I went through many years dealing with depression and mood swings. I went back to in my late 30s. I finished my bachelor’s at 40 and my master’s in Social Work a few years later. I was having fatigue and chorea at that time but the symptoms weren’t strong enough for a diagnosis. In 2013 I was diagnosed with Parkinson’s Disease due to the chorea. This was incorrect. My rheumatologist diagnosed me with SLE in December 2014. I was almost 45 at the time. I was only able to work as a social worker for ten months in 2013. My memory problems, confusion, chorea and fatigue made the job impossible. I tried a few other things that didn’t work either, so here I am. I haven’t been able to work in over two years. I have a very supportive husband who works for BJC. BJC owns Barnes-Jewish Hospital, affiliated with Washington University. I’m fortunate to have all of my medical care through them. They have been wonderful.My diagnoses include asthma, Stills Disease, depression, bipolar disorder, GERD, fibromyalgia, sciatica, scoliosis, DDD, SLE and lupus cerebritis. The cerebritis is my main problem. I have been on the oral form of cyclophosphamide since last June for that. Mycophenolate and azathioprine did not work well, so cyclophosphamide was next. It has helped but it took seven months before I could tell a difference. My rheumatologist is weaning me off of it now, with the idea I will be off of it totally by the end of June, making it a one year treatment. Since it has helped I have mixed feelings about that. He has told me he will use prednisone for any lupus problems. Of course it is unknown what will happen with the lupus in general and the cerebritis. The cerebritis has been confirmed by several brain MRIs and a lumbar puncture. I have a brain MRI every six months. I have had neuropsychological testing three times. Most recent was February of this year. They have shown a trend of verbal short term memory decline and brain speed. Another thing that is unusual about me is that I am ANA negative. I have always carried a positive dsDNA and that is what my diagnosis is based on. I have studied lupus and in particular cerebritis. Many people think I have a medical background, and I do have some training and experience as a foundation but the rest I have learned on my own. I joined the Brain group because right now it’s therapeutic for me to talk about my cognitive problems. Almost no one in the lupus group has this and many think they have it because they experience brain fog but this is not brain fog. It is permanent scarring on my brain caused by inflammation due to lupus. My rheumatologist says the best we can hope for is to slow the damage. I find that very scary. You can introduce me to the lupus group/s but I don’t promise to join in the conversation very often. Right now I’m more overwhelmed with the brain part. Thanks for listening.Cathy Hutcherson

Mar 24, 2017 · Autoimmune diagnosing problem in Autoimmune Diseases

Please remember the ANA is NOT a test for lupus. 97% of the people who have lupus have a positive ANA, so you can’t rule it out. Also, there are perfectly healthy people who have a positive ANA. A diagnosis should be based on your medical history, blood work, clinical findings, and other tests the doctor may perform.

Mar 24, 2017 · Stills Disease in Autoimmune Diseases

I had Stills Disease as a child, so my experience may not be helpful to you as that was around 1980. I was on prednisone for a short time only because they were afraid it would interfere with my growth (I was 12), gold shots helped and finally what helped the most was tolectin. This is an anti-inflammatory that I believe is still used. The disease died down as I went through puberty but it took about three years after that for me to feel like a normal kid. Today I don’t show signs of it but I do have lupus.