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Posts (10)

Apr 22, 2017 · Frontotemporal Dementia in Brain & Nervous System

Hello,
Oh my. I am saddened to hear about the outcome.
Jccr

Apr 21, 2017 · Frontotemporal Dementia in Brain & Nervous System

Hello,
I hope you are well. I am curious, at what age was your MIL diagnosed with FTD ? How Was the progression of the disease?
Thank you JCCR

Apr 9, 2017 · Frontotemporal Dementia in Brain & Nervous System

Good morning,
I have a question for those with FTD. Are any of you using homeopathic remedies for any symptoms/condition ? My nuerologist recommended I use OTC liquid B-12 drops which I have been taking since my diagnosis. I am not certain if any additional supplements are suggested.
Thank you in advance for your replies.

Mar 29, 2017 · Frontotemporal Dementia in Brain & Nervous System

I am learning that FTD is not a well known disease. As in my case, I was not familiar with this diagnoses and learned there is a lot of research to be explored.
Peace and comfort to you all. JCCR

Mar 29, 2017 · Frontotemporal Dementia in Brain & Nervous System

Hello Bill. Thank you for your reply and for sharing. I agree with you that a support group would be a benefit as there would be an understanding of the disease with the participants. I am currently participating in cognitive therapy sessions which is helping me to incorporate new routine behaviors.
Thank you for your encouragement.

Mar 29, 2017 · Frontotemporal Dementia in Brain & Nervous System

Hello there. Thank you for your reply and suggestions. I feel like Alice in Wonderland in trying to advocate for myself and finding a local support group in the north Orange County region of California. I spoke with a respresentative from the AFTD and inquired about a group in my region and there is none. I am awaiting receipt of an information packet and curious to read the contents.

Mar 29, 2017 · Frontotemporal Dementia in Brain & Nervous System

Hello Scott. Thank you for your post. It is encouraging to know you are knowledgeable of FTD and sad to hear that you MIL was also affected by the disease. I have a question, did your MIL have ear ringing and pressure headaches above the eyes? I have been experiencing these new symptoms this week.
Thank you for your time.

Mar 29, 2017 · Frontotemporal Dementia in Brain & Nervous System

Hello. Thank you Colleen for encouraging me to start this forum. I am excited to see the responses and that there are other individuals who are familiar with this disease.