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Mar 24, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

I’ve had the loop for about 1 year 5 mouths… it has shown af, tackiecardia and bradycardia, eptopic beats,. (sorry for spelling). I fill my heart 24hours a day, more at nite when I’m in bed… when I got the loop fitted it only took them 10 mins… so much better then wearing a monitor… I tell my docter every thing.. but I’m not sure he hears what I say… (but I may be wrong)

Mar 24, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Yes. I’ve been gene tested.. I’ll check that page out now.. many thanks. 🙂

Mar 24, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

I do not have an obstruction, I had to go on line to find a docter. But I found one,and he’s only 2 hours way so not to bad… thanks. 🙂

Mar 23, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi all… I’m in the uk. And my docters took over 20years to tell me what was wrong. I’ve been blackin out from the age of 16…. I’m now 39 and was told I had hcm. 3 years ago… every time I had a hcm event I called 999 want to hospital and all looked ok.. I would be in hospital for 1-3 days and then sent home with the all clear. But I’m here :). I have 4 kids and 2 grandchildren. All my kids have been gene tested and all have came bk as clear. Sometimes I do not believe it, all 4 are well….. so my grandchildren will be safe… but any way no more about me.. hi all….. 🙂

Mar 23, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

I have a loop recorder fitted.. and every time I fill like my hcm is playing up. The loop recorder says all ok…. I can have what fills like a heavy weight on my chest and I find it hard to get a full breath. But the loop says alls well… my heart is in synus rhyme.. (sorry for my bad spellings)