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Posts (15)

Apr 19, 2017 · Complex regional pain syndrome or reflex sympathetic dystrophy in Chronic Pain

@JustinMcClanahan Have you heard of any one having it in there face and both eyes. The doctors do not know what they can do for me right now. I just like some relief from buring in my eyes. I also settled in my lower right rib cage. Really hard to do anything because some part of your body hurting bad.

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Apr 17, 2017 · Complex regional pain syndrome or reflex sympathetic dystrophy in Chronic Pain

I have pretty much have gone to none breakable dishes in my house. Dishes and glasses were getting a little to expensive. I am pretty much unable to do any exercise do to the losses of function in my ankle and foot. I have a pretty good limp when I walk do to that leg that throws me off balance alot. I have tried PT twice that has not helped at all. Can not use cane do to my right hand and wrist that has very limited function. These are part of the reason I joined the chat to see what is out there for our condition and what has worked.

Apr 17, 2017 · Complex regional pain syndrome or reflex sympathetic dystrophy in Chronic Pain

With the topmax I feel pretty groggy in morning and sometimes I have to lay down take nap. I tried kidney beans and marbles and dry rice in bowl for therapy. That did not work out to good but I will keep trying. I do not have much of grip at all in that hand I have to use my elbow for getting in and out of certain furniture. Right hand most of time pretty much useless along with my left leg. Hydroxyzine also known as Atarax they use it for itching but also for anxiety. I do not have any side effects from that one and you can take up to four times a day.

Apr 15, 2017 · Complex regional pain syndrome or reflex sympathetic dystrophy in Chronic Pain

I was wondering if you have tried a pain psychologist. I have heard they are really good to help with pain management. Some clinics are starting to use Ketamine, pain pumps, and injections . I do not know if you have tried these or are allergic to any of thsrs.

Apr 15, 2017 · Complex regional pain syndrome or reflex sympathetic dystrophy in Chronic Pain

I will have to try that on my hand but the worst part of the itching is on my head and face. That makes it really really hard to lay down on you head and sleep. Have you ever tried hydroxyzine generic name they use it for anxiety. I found that pain and anxiety feed each other so that one has help me out. I do not know if you are on any regular pain meds or not. I take hydroxyzine and pain pill middle of night when I wake up hoping to gain another one to two hours of sleep. To bad you can not get different insurance that will help pay for this. Makes person wonder what happened to affordable health Care act. Do you live in Minnesota or Wisconsin because Wisconsin you can get state insurance depends on your income.

Apr 14, 2017 · Complex regional pain syndrome or reflex sympathetic dystrophy in Chronic Pain

That it would be awesome to find a drug fights and or slow down stiffness and other side effects of CRPS . Therapy helps my hand alot along with my wrist from stiffing up to bad. One thing I have problem with sometime the effected area starts to itch really baddly and can be rough sometimes. I do not know if that has ever happen to you at all.

Apr 14, 2017 · Complex regional pain syndrome or reflex sympathetic dystrophy in Chronic Pain

I have just started Tomax this year. The doctors just increased my dosage and kind of kicking my butt. I am also been on Gabapentin for some time. They help some with the pain but not much. Still hard to get out and do any thing especially when eyes are sensitive to light. I go to occupational therapy once a week to keep my hand some what moving. Lost most of my finer motor skill in my dominant hand which sucks. The spinal cord stimulators I heard they would have a 50-50 chance that they work but sometimes they make the pain worse.

Apr 14, 2017 · Complex regional pain syndrome or reflex sympathetic dystrophy in Chronic Pain

I am hopping that the new meds work but like you said it will take a month to know. Sometimes I do not want to know if CRPS has spread. I think it might be easier to deal with the unkown at least you have ideal what it may be. I have tried everything for sleep random nothing works for me either. Scariest part is I am starting to get adjusted to my goofy sleep schedule. I gusses coffee at two clock in morning not so bad because the house is still quiet.