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Posts (11)

Jan 31, 2018 · Eczema and skin rash in Skin Health

My son has severe eczema, skin falling off and bleeding. I found if he soaked 5 minutes in Epson salt in the bathtub after washing, then dried off thoroughly, then applied eczema lotion (one with no perfumes or dies for sensitive skin) until it cleared up or whenever it would flair up, it went away faster than any steroid medication. He has a lot of skin and sinus allergies too.

Oct 27, 2017 · Cerebellum Brain Atrophy in Stroke & Cerebrovascular Diseases

@oldkarl I know I won’t live to see 60. I figure I have 5 yrs or less. I don’t want to live with the inability to function or communicate. I am currently using a walker, sometimes a wheelchair as walking is so difficult some days. I lose my voice daily, the longest stretch was for 1/2 hr. I have difficulty swallowing some days. I haven’t heard of anyone my age having cerebellum atrophy. The disease has been very progressive this year. I plan to use palliative care services this year. I don’t want to be dependant on other people to care for me. By the way, I live near Boston, near the ocean too, but on the other side of the continent. I don’t know how to send direct mail.

Oct 27, 2017 · Cerebellum Brain Atrophy in Stroke & Cerebrovascular Diseases

@oldkarl I’m amazed that your family is afflicted with this disease. Is it hereditary? I’m waiting to have genetic testing done. I worry that my children could have this disease too. Can I ask how old you and your sisters are? I am 49 yrs old and am having a hard time accepting the degeneration. I don’t know how much time I have left. I have fallen several times and hurt constantly from the injuries. I don’t know where to go to get support from others. I feel like I am the only one with atrophy.

Oct 2, 2017 · Video Q&A about Palliative Care in Caregivers

Is it more appointments by having palliative care?

Aug 14, 2017 · Video Q&A about Non-Surgical Weight Management Program in Digestive Health

Is weight loss from medicine handled differently than from food?

May 20, 2017 · Cerebellum Brain Atrophy in Stroke & Cerebrovascular Diseases

I am in severe pain since falling about a month ago, then falling two weeks ago. I stumble, catching myself by grabbing onto walls, furniture, and people. Some days are better than others. Seems like I am deteriorating faster than previously. I am frustrated with this situation and feel like crying all the time. My life revolves around trying to stop the pain.

Apr 20, 2017 · Cerebellum Brain Atrophy in Stroke & Cerebrovascular Diseases

I haven’t seen any responses but I saw a mother trying, like me, to make sense of this diagnoses. I know there is no cure or treatment and little that can be done to slow down the progression. I am going to a physical therapist to help with balance and to monitor my deterioration through assessments so I get the correct devices for mobility. I have the form that is like Parkinson, with tremors.