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Jul 11, 2017 · Chiari Malformation type 1 in Brain & Nervous System

I had a hard time getting it diagnosed in my area so i now had a dr in Chicago that is about 6 hours from me that specialized in chairi malformation and said it is a chairi and is at my c2-c3. They are now ordering more MRI’s of my lumbar sacrial and thoraic areas. My symptons have got worse where i fall and do get hurt so im hoping it is done soon. Thank you for inquiring.

Apr 25, 2017 · #MayoClinicNeuroChat on Innovations in Neurosurgery in Brain & Nervous System

After lots of dr appt i was told my mra had abnormalities but was told the dr did not tell the nurse that was notifying me of results what were the abnormalities but i was to get a cta of my brain and neck. Very confused what is going on. Please enlighten me what could be abnormal and what they are checking for since my dr has not told me. Could this be because if the chairi malformation that i was diagnosed with?

Mar 11, 2017 · Chiari Malformation type 1 in Brain & Nervous System

Also, i have tried botox and lots of meds such as depakote, indomethicin, nausea meds. They will put me in the hospital to stop the pain. Im tired of just masking the symptoms with no relief. I get sharp shooting pain that starts in my neck/ back of my head. My upper mid back has pain it. If i sit up too long or sneeze hard is when the pain will start. Now the new dr wants to put me on opioids or send me to a pain clinic. Does anyone else have these symptoms or is it really just migraines?

Mar 11, 2017 · Chiari Malformation type 1 in Brain & Nervous System

I now have ringing in my ears, dizziness, and i even passed out twice. I have facial drooping so bad i cant see out of my left eye while my right eye vision is blurry. When i go to the ER they immediately start me on stroke protocol . I have numbness in my right foot. Nausea/vomiting. My pain is so tense it is a severe pressure in my head. My blood pressure gets very high at 210/147. I constantly have my head hurt 24/7. Im told t
My bp is high from the pain. Ive had 3 neurologist tell me i have a chairi and it went from 2-3 mm to 3-4 mm since 3 years ago. My problem is i just saw another neurologist and she says its all from migraines. I went telling myself i will do whatever even surgery but i feel im going backwards from 3 years ago since now its just migraines again. I was put on medical leave due to not being able to do my job as a nurse. I just want my life back and i am so confused whether i should try yet another dr. I feel so defeated.

Mar 11, 2017 · Chiari Malformation type 1 in Brain & Nervous System

Hi this is my first time. I was diagnosed 3 years ago with a chairi malformation. My symptoms have gotten worse causing me to not have my life. I have seen 2 different neurologist saying my symptoms are from migraines. How can you tell the difference between migraines and a chairi?