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Mar 7, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

Thank you! He has all the symptoms except Splenomegaly. He already had two blood transfusions in two mouths period. He is very weak and recently experiencing fever. The Dr’s in Chicago said there are no drugs that will work on him since he has CALR mutation. The only option is bone marrow transplant. We have an appt coming up in march at Mayo. Hope they can give us some good news.

Mar 5, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

I will definitely let you know.

Mar 5, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

Yes, I will. The appt is in march.

Mar 4, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

Thank you so much for your help. We will be visiting Mayo soon. I will keep in touch.

Mar 4, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

Thanks for the response. I’m happy to hear the medication is working for you. I, too, hope they find a drug that will work for him as well.

Mar 4, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

Hi my brother just diagnososed with myelofibrosis with CALR mutation. If any one of you have any information about this condition, please help us.

Short history: 6 years ago he was diagnosed with ET and has been taking hydroxyurea since then. Now, he is experiencing symptoms of Myelofibrosis. The doctor did a bone biopsy and has officially diagnosed him with Myelofibrosis with CALR mutation. We would like to know if there is a specific drug that will work on him. Any information will be helpful and greatly appreciated!