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Posts (15)

Mar 24, 2017 · How can I be a supportive caregiver? HPV Squamous Cell Carcinoma in Head & Neck Cancer

Hi Teresa! I dont know yet how long he will be there. He has an appt next Fri in Omaha to discuss surgery so I guess we will find out then!
Sandy

Mar 22, 2017 · How can I be a supportive caregiver? HPV Squamous Cell Carcinoma in Head & Neck Cancer

Thanks Loli… Im sure he will be in good hands. Just the thought of me not being with him 24/7 is unbearable! I just hate to pay for a hotel when all I will be doing is showering there!! Ugh..
Sandy

Mar 21, 2017 · How can I be a supportive caregiver? HPV Squamous Cell Carcinoma in Head & Neck Cancer

Loli.. not your mistake!! I am confused.. the dr has us confused! First he says yes its HPV then after the PET scan, he says not HPV, then again says, he thinks its still HPV even though the scan says no! We still have no date for Omaha… and I mistakenly thought I could stay at Hope Lodge, only to find out its still in construction until the fall of 2017. Do you or anyone know if its allowed to stay in the room with my husband? I will sleep in a chair .. I dont mind!! And are there showers available?
Sandy

Mar 20, 2017 · How can I be a supportive caregiver? HPV Squamous Cell Carcinoma in Head & Neck Cancer

Loli, the PET scan only revealed Squamous Cell Carcinoma.. not HPV related!

Mar 20, 2017 · How can I be a supportive caregiver? HPV Squamous Cell Carcinoma in Head & Neck Cancer

Thanks Loli! I dont know where to begin…. my husband & I will be headed to Omaha Nebraska for his surgery very soon, then back home for treatment. His PET scan showed no other areas, but it also showed no point of origin. His dr believes he has micro tumors in his tonsils that arent able to be detected on scans. I am so frustrated with this process
Has anyone else had this happen where the point of origin was not found?
Sandy

Mar 11, 2017 · How can I be a supportive caregiver? HPV Squamous Cell Carcinoma in Head & Neck Cancer

Thank you Teresa! I will check into her book!!
Sandy

Mar 11, 2017 · How can I be a supportive caregiver? HPV Squamous Cell Carcinoma in Head & Neck Cancer

No Loli- These are all great great ideas! I have no idea what all I need or dont need.. your help along with others is invaluable to me! I dont anticipate any help from family as none live close by or have even said they are coming to Omaha when he has surgery! I think Im on my own so I have to be very prepared!! Thank you again so much!
Sandy

Mar 11, 2017 · How can I be a supportive caregiver? HPV Squamous Cell Carcinoma in Head & Neck Cancer

I got a binder & dividers.. trying to set it all up! Any advice on what catagories to use? I have 8 dividers.. also printed off a calendar, included loose paper & spiral notebooks…thank you again for the awesome advice to get organized!!
Sandy