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Mar 1, 2017 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Hello everyone..I am 22 years old and I was recently diagnosed with MALS with greater than 70% stenosis at the origin of the celiac artery.. the U/s states the velocity goes up to 304 cm/sec when I sit up.
I have began having a hot bursting pain through to my back the past week, it feels like im laying on a really hot heating pad. I havent been able to eat more than a couple little bites during the day and have lost over 10lbs. I cannot stand for more than 10mins without having to lay down because of pain.
My insurance doesnt want to pay for out of state healthcare and my doctor isnt willing to go to the medical board, the doctor they are assigning me has experience with gallbladder removals, not mals.
I was wondering if anyone else had had to pay out of pocket and how much surgery happened to cost you? Also, had anyone else had the hot bursting pain inbetween their shoulder blades?
I am trying to come up with the money to go to Cleveland to see their doctor, When I tried to use Mayos cost estimator tool I couldn’t find MALS.
If anyone could give me more info about Mals and if they ever had stenosis, I have so many questions and nobody is giving me answers.

Thank You,
Sarah