one thing i have found out, dont take it on an empty stomach. it makes me sick if i do.ne cautious about claims about miracle claims to cure IPF.there is a lot of research going on and it appears hopeful for progress.
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i have been taking perfinidone for 2 years. it does not cure pf,, but slows it down. at first i had some nausea and tiredness but it wasn’t really bad and went away after a few weeks. you have to take after eating. the alternative is an earlier death.
i was diagnosed with IPF in 2009. I have had a slow progression but lately it seems to be going down hill faster. I know what the outcome is going to be but i have done all i can to slow it down. There has been a lot of research on IPF in the last year with some promising results. I spend as much time with my family as i can. I have a 16 month grandson that i love and spend a couple days a week with him, he and I are good friends and i love him dearly. I am thankful for the time i spend with him and look forward to the time i spend with him. I try not to dwell on what i will miss as he grows up and concentrate on what i get to experience with him. My advice to others is to try what you can to extend the time you have. Be careful to avoid advice that is unproven and work with your doctors. Explore research studies that deal with our disease. you can find studies at clinical trails.gov is the official gov database of studies and you can look up for free.I thank my wife of over 40 years for all the things she does to help me. she is a retired RN and sees to it that i take my medications as i am suppose to. I could not go thru this without her help and love.