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Oct 31, 2017 · Liver hemangioma/liver resection in Digestive Health

Hello, my first question is, did you have a liver biopsy done?
My GYN found a large upper right quadrant mass in July of 2015. Had MRI referred to surgeon at local hospital, initially he thought it was a hemogemia . He wanted to do surgery and really didn’t consider if it was anything else. I took it upon myself to send my MRI to Yale New Haven Hospital to a surgeon who specializes with “anything liver”. First he did a a whole batch of blood work, all came back within normal ranges. Then we did a liver biopsy ….. came back as metastatic melanoma 14 cm X 7 cm BRAF wIldtype with the NRAS mutation and unknown primary. Never had skin , ocular or muscolar Melanoma. Inoperable and I have been treated with immunotherapy. My tumor is 3.8 cm X 1.9 cm and has not metastisized to any other part of my body. I’m stable but still receive immunotherapy every 3 weeks. No surgery as my Melanoma travelled through my blood and not my lymphatic system. I tell you this not to scare you but to inform you to have every test possible prior to surgery.
I will keep you in my prayers.

Oct 21, 2017 · Caring for someone with dementia / Alzheimer's in Caregivers

My MIL age 78 has Alzheimer’s and is in an assisted living home ( Alzheimer’s side). She has fallen several times and is now in a wheelchair.
She fell again this morning in the bathroom and is now in the ER.
My question (s) is ( are) :
Should her children look at seeing if the falls are from the disease or possible strokes?
What are other types of facilities are available as this disease progresses?
She does not get any physical or occupational therapy at this new place ( Arbor Terrace Morris Plains NJ), is that usual?
The facility suggested getting her an aide – are there specific nursing homes for Alzheimer’s patients? How do I find them and secondly how do I know the level and quality of care that they offer?

I’m the daughter in law and my opinions don’t always matter to my brother in law or sister in law even though I have friends who have gone through this with their parents. My husband does value what I say but his sister thinks she knows everything & she doesn’t share pertinent information with my husband. My brother in law tries to but his position requires international travel quite often. My husbands sister lives in CT and we are 15 minutes from the assisted living facility. Very complicated to say the least. Any advice that I can share with my husband would greatly be appreciated.
Her strain of this disease seems very aggressive – moving quickly to say the least.
Thank you in advance for your advice and support.

Feb 27, 2017 · Stage 4 Malignant Melanoma internal in Cancer

Thank you. I am treated at Smilow Cancer Hospital which is part of theYale-New Haven Hospital in New Haven CT.
I did the 4 doses of the combo ( Yervoy & Opivido) I developed some sarcoids in my lungs and on my elbow, wrist, and knuckles. I had to stop opvido for 10 weeks and was treated with steroids by the pulmonologist.
Lungs are clear!
I have been on opvido since April 22,2016 every 2 weeks until Beginning of February and the protocol is now every 3 weeks.
I have fatigue and achy joints . I can live with that.
They do not know the primary area but do know the melanoma traveled thru my blood.
I had my last scans in January and there was no shrinkage from my previous scan 3 months prior. I have the MRI on my brain and a CT scan on chest, abdominal and pelvic areas.
So , I’m living with this and hope and pray that it will shrink and not spread!

Feb 27, 2017 · Stage 4 Malignant Melanoma internal in Cancer

Hi I was diagnosed stage 4 metastatic melanoma on my liver September 2015. No primary cancer point. The tumor was 15cm X 8 cm…. Inoperable. Fortunately the immunotherapy is working . I asked my oncologist is I would ever get to the NED status and she was I don’t think so. I’m stable , no spreading , and the tumor has shrunk a great deal.
Is there anyone that is in a similar situation?