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Posts (25)

Feb 28, 2017 · fibromyalgia pain in Chronic Pain

@jenapower I haven’t found any vitamin’s that work for fibro, although for me getting rest helps a little , or should I say sleeping all at one time instead of 3 on 3 off then 3 on again, ugh ,,,, I did hear mocha tea helps for inflammation and for fatigue , I just bought some and will let you know how it works .. As far as fibro fog, the only time I get that is when ppl tell me things when I am in severe pain , then I do not remember, which I guess is understandable , I don’t want to worry you but it wouldn’t hurt to have a CT scan just to see if anything is going on with your brain as depending on your age , but fibro can cause severe forgetfulness so that’s a toss up and I don’t know of anything that works except I just read an article about vit E helping with memory ,
Mayo is the best place for you to go ,I myself want to go there .. and the only way I know of to get all those dr.s in one place at one time,,,,where one is closest to you , I am not sure but if you type in mayo clinics on computer I am sure it will tell you where the closest one is , Big gentle hugs to you and blessings I hope you figure all of this out and would be interested if you do find something that helps so keep in touch with all of us as I am sure we are all looking for something , anything to help .

Feb 27, 2017 · fibromyalgia pain in Chronic Pain

Thank you all and thank you @jamesthee for the prayers , hugs

Feb 27, 2017 · fibromyalgia pain in Chronic Pain

@irene5 I don’t take anything vitamin wise , as I seem to get sick to stomach every time I do …. So sorry to hear about your hands , that sucks ! Must be so hard on you , and I do understand, on top of fibro I take care of my BF of 12 yrs , who is 520 lbs and has FTD, He has a bed in the living room and is very aggressive , likes to put me down and such , its difficult caring about someone when they are like this ,,,as you can imagine ,,, Have a good day luv and hang in there. I am with you in spirit . My name is Deb btw , ..very nice to meet you here .

Feb 27, 2017 · fibromyalgia pain in Chronic Pain

Thank you Irene , I didn’t realize hand swelling was arthritis related ,My Dr. has checked for markers for swelling and inflammation but by the time I get blood work done the swelling is down , and when I see him it isn’t right after I wake so I have taken pics to show the swelling when I go for my next physical this week . I was worried it was my heart …and the hotness, only when I lay down , is just weird , it goes away after a half hr or so but very uncomfortable , I use a pillow in the freezer to help me fall asleep . but worried about what is causing it . It could be my menopause but I don’t have any hot flashes during the day so didn’t think that was what it is thank you for your response and sorry you are going through such pain . Blessings / @irene5

Feb 27, 2017 · fibromyalgia pain in Chronic Pain

Does anyone else have swelling with just their hands , especially in the mornings , My fingers feel like sausages and my hands don’t want to work….also when I lay down I get horrid heat, burning up heat, and I thought it was menopause but sense it only happens when I lay down now I am wondering if my Fibro is doing this and its just a new symptom.

Feb 26, 2017 · fibromyalgia pain in Chronic Pain

@hmr52 I have had fibro for 12 yrs now , I got it shortly after my husbands death about a yr later and yes I do believe it is stress, illness, and trauma related, I have read an excellent book called The Fibromyalgia Advocate , written by Devin J. Starlanyl, MD Getting Support you need to cope with fibro and myofascial pain syndrome ….A girlfriend gave it to me and it opened my eyes to things I hadn’t heard on the net….I hope you find it helpful and prayers to you .

Feb 26, 2017 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

oh @foxylady42 my heart aches for you and your husband , I am so glad to hear about someone with frustration , although that sounds bad , I don’t mean it that way it only makes me feel better that I am not the only one , and I understand why you have it , believe me ! And I do believe it is only our human side that makes us this way and its normal , I am glad that you find some humor in this , and it does help, You brought a smile to me with the refrigerator , LOL , sounds like something I do , I also pretend in another room where he cant see me that I am strangling him , not in a bad way but like a funny way for me to let off steam . I wish I could speak with ppl about this but he listens to everything I say at home and I don’t have opportunity to leave him often , so when I get frustrated I cant really tell anyone …that is until I found this place, I don’t know what I would do if I didn’t have this place, its a godsend … Prayers for you and your husband , and I pray that you both get through this with as little difficulty as possible , Blessings to you both , and a huge thank you for your story and sharing , as you may have saved a life tonight with it , !!! Mine

Feb 26, 2017 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

Ok, I wish everyone well, but I have to go to bed just to save my sanity ….I just gave him a shower and being 520 lbs he decided to get on his knee’s which I told him not to do that , and he wont listen , so he got stuck on his knees in front of shower and couldn’t get up ! He flailed around until I could get him to listen to me , which would have been better if he would have from the beginning but finally using his cane and the counter and the toilet seat I got him to follow direction s and got him up …. What an ordeal , … Then to top it off he told me he better get his things in order now and get life insurance so he can leave his brother something and his nephew , and now that he is getting bad he said he figured it was worth it, Am I not worth it ? Then he said he didn’t want to marry me because he figured out… why should he, and then he said he might want to cause he might want to have help in the future…. what the **** …. I have been with this man for 12 yrs , taken care of him for all of that time , doing lawn work, house work ,laundry ,cooking , and everything sense I love him and taken care of him as he has been in the hospital and bedridden a majority of this time and he has never been able to do anything for the past 5 yrs. and he has said all these nasty , rude and totally mean things to me that have made me feel just awful and angry , and I feel like crying but also like I have done everything for nothing , no love back ;( …. is it the disease or him ? idk ,,,, I honestly don’t know what to do , do I let him stay because I still love him and take care of him because its the right thing to do ,,,,or do I say go to a home , because I would feel awful if it was the disease talking and not him , if I go one way , and on the other, can I live with such disrespect with this disease he has for another ? how many years ? Totally confused and upset right now , hope tomorrow bring s a better me , and maybe sleeping will give him some time to process what he has said . I sure hope so , or praying tonight to ask God to give me the answers in all this . I know he has no one else , so believe God gave this to me to handle , no one else would be able to do this for him as he is so aggressive and I know his family wont help….not unless money is involved , then they will come out of the woodwork.( only after he has passed , they wont help him now while he is alive and needs it ) He has had very little money for yrs now , and we live off of very little , The man I knew is gone , and I guess I am grieving in a way . is that it ? I just don’t understand this at all . I hate bvFTD ! So sorry to you all , my apologies, as I had to vent or explode, Off to bed now and hoping and praying you all are having a better day and night then I am , Blessing s to you all