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Posts (45)

1 day ago · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

with RA and the biologic modifers your whole immune system is suppressed. this means you can be subject to any viruses/ colds very easily. my experience with biologic modifiers was horrible, the worst being kidney failure which put me in the hospital until the kidneys came bac; torn retinas in both eyes requiring surgery; a severe rash in the groin which almost would have required losing my testicles. but that is my system. not everyone will experience what i had. also if you go on any biologic modifier have your liver enzymes check before and during the use of this medicine since a lot of it has to metabolize thru the liver…..i had at one time cellulitus and had c.diff. but the c.diff was after the removal of my gallbladder. c. diff can be eradicated with vancomycin orally, but it is a very strong antibiotic and can be hard on the digestive system, as i experienced. i was on it for 2 weeks and my stomach was hurting all the time.

1 day ago · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

with a 2:1 cbd/thc ratio did you feel effect right away and how long did the effect last?did you use pill form or vapor form? I ask this because i am going to get a certificate for medical m. sometime this week and with my bad digestive track i will probably have to go vapor…kozlo52

2 days ago · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

thank you for your reply. my next step is to get a medical marijuana license and start with some hope and help there. My friend,pat was on all the biologic modifiers and they did not really help her. she can't take opioids because she gets sick from them. she is now on medical marijuana and says she never felt so good. She is no longer on the biologic modifiers…….kozlo52

2 days ago · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

make sure if you are on prednisone that you maintain an proper calcium buildup in your system, since prednisone will strip the calcium out of your bones…..kozlo52

3 days ago · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

you may have a difficult time getting a doctor to write you a script for an opioid. i have had RA for 30 years. i have been on almost all the biologic modifiers with very bad side efects; the worst being failed kidneys (kineret) and torn retinas in both eyes (humira). i have controlled my Ra many years with 1- 10 mg dose of oxycodone and 4 mg of prednisone. Now with this effort to almost stop opioids due to the excessive use, i can't find a doctor in pittsburgh,pa to refill my script. I am being referred to all these pain management groups, of which many don't prescribe opioids. I can't take more than 1 oxycodone due to developing body itch. if i can't get a script i may have to get a license for medical marijuana and try that. those of us who really need this for our arthritis pain are being punished. but if you go on an opioid your digestive track will slow down. I use miralax every day to help promote bile movement…. kozlo52

Mon, Mar 11 1:36am · Undiagnosed auto immune disease in Autoimmune Diseases

be very careful with plaquenil. it can cause very bad issues with your vision. have your vision checked every 3 months, with this drug….kozlo52

Mon, Mar 4 2:22am · Gallbladder surgery in Digestive Health

have a completebloodwork fasting and se what your b12 leveks are. Low B12 levels can affect the nervous system. then go from there to see what you need. if you need B12 get the shots by your pcp. In one month getting 1 shot a week will bring you back into the 400-1100 range for B12…..kozlo52

Mon, Mar 4 2:12am · Gallbladder surgery in Digestive Health

when you say upset what exactly do you mean? Nausea? stomach pain? rumbling and noisey? i can tell you after my 360 degree fundoplication in nov. 2016 and gallbladder removal in july 2017 i have never been the same with stomach noise after eating; problems drinking water; i can drink boost , but my weight gain of 22 lbs has occurred after this. I still have "heartburn" but it is not acid burn, since the 48 hour bravo test showed no acid backleakage and there is no visible signs of bile in my stomach which could bea culprit. All my doctors and surgeons don't know so they say i have a "hypersensitive esophagus"…. how are you bile movements? perhaps a stoll sample may help see if there is anything unusual. what helps my "fake heartburn" is atavan – 1mg-3times/day. but after the 2nd tablet( at least 4 hours apart) i get really sleepy and fall aleep at 4pm till 7 pm every day. sleep cycle is all messed up. keep trying to get answers from your doctors. When it cmes to digestive tract issues i find these doctors don't know a lot…..kozlo52