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Sun, Apr 12 2:48am · Husband diagnosed with RA in Autoimmune Diseases

how was your husband diagnosed with RA? I was first diagnosed with it 31 years ago. The bloodwork did not show evidence from the rheumatoid factor. i had joint pain everywhere. the big thing that showed up in the bloodwork was the sed rate (ESR). my sed rate was well beyond 20 (o-20 is normal). Sed rate is a measure of inflamatory/pain one might feel. I was started on methrotrexate and my liver enzymes went off scale. In y worst days my sed rate was up to 150. i had gone thru all the biologic modifiers with somevery severe results. when i was on kineret, i had kidney failure and gained 43lbs and was hospitalized for 1 week till they could get my kidneys back to normal. when i was on humira i had torn retinas in both eyes (at different times), which had to be repaired. after that i told my PCP i will regulate my RA with prednisone and oxycodone . to day i stll do. I have had 2 knee replacements on my right knee,1 knee replacement on my left knee, i hip replacement on left hip. this is how i reacted to the RA drugs. My bodyis very sensitive to medicine…. i am 68 years old and will need my left hip and left knee replaced (16 yeas old and 17 years old respectively. i would be curious to know what medicine your husband is on. i aslo had dry corneas inboth eyes from the RA which requires Restasis in both eyes daily. RA is a progressive degenerative disease . I also have stenosis in the lower back (L4-L5), which requires cortinsone shots in the back. I have stenosis in my neck which can't be operated on. when a person is on pain relievers (NSAIDS), such as ibuprofen, remember to take it with food, or your stomach will get very bad. Being an RA patient i cannot donate blood, due to my still active RA. I cannot take any NSAIDS due to previous kidney failure and my stomach cannot stand theheartburn(even after stomach fundoplication). Being on prednisone and having RA means i am immuno supressed, which with this corvid-19 virus i have to wear a mask where i go… good luck and god bless to you and your husband and happy easter!….. kozlo52

Nov 20, 2019 · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

when you say you are allergic to nickel, did an allergist skin test you for this or was this from bloodwork?….kozlo52

Nov 20, 2019 · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

when you say you tested positive for RA, does this mean that your rheumatoid factor was positive? what was your "sed rate"? do you have a lot of joint pain? have you been tested for Lyme disease? do you have swelling of the joints?…….kozlo52

Nov 12, 2019 · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

what is your current sed rate (0-20) is normal? iahve and continue to battle RA for 30 years. i have had 19 operations in 19 years. all these operations were due to RA or opioids, except for one whic was a stomach fundoplication and it doesn't/ heasen't worked for me. you may wast to condider medical marijuana . i have read that a 30: 1 ration of CBD to THC works for RA patients to alleviate pain. however you can't drive with medical marijuana. physically you might feel ok but your response reflexes may not be as sharp. if stopped for a traffic or accident by police and you are tested it is an automatic DUI in the state of PA. … good luck….kozlo52

Nov 12, 2019 · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

for the nerve pain in the back and thru the legs you might want to consider lower back injections with cortisone. however you will need a lumbar MRI of the lower back to determine were to inject. i have stenosis of the lower back L4-L5 and get cortisone injections every 3 months. it doeshelp control the pain. one medicine that really helped alleviate back nerve was lyrica. it worked extremely well for me for 1 day. after that i developed a whole body itch that took a month to get rid of. i couldn't take it anymore. gabapentin or neurontin may also help, since lyrica is very expensive. i have talked to people who have had lower back surgeries and lot of these surgeries don't work and can make pain even worse. i am doing my best to avoid back surgery….. best of luck…..kozlo52

Nov 12, 2019 · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

my experience with methotrexate (1940's chemotherapy drug) was i had to get off it after a few weeks because it drove my liver enzymes extremely high.be very careful with plaquenil because you will need eye exams frequently. my experience with plaquenil was it made me sick after 3 days. note you may not experience these same symptoms as i did. i don't know of any remedies to help control the RA. What is your sed rste (0-20) is normal- this is a measure of inflamation and pain. also what was your rheumatoid factor? this is all from the bloodwork. alll the biologic modifiers for RA can have very bad side effects. did your doctor prescribe any NSAIDS? i was on mobic (generic version) for many years and it really helped with pain. but all nsaids can affect the kidneys. … god bless and good luck….kozlo52

Oct 28, 2019 · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

my problem with methotrexate was that my liver enzymes went very high after one month. it had to be stopped. this drug was a chemo drug in the late 1940's…….kozlo52

Oct 28, 2019 · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

be very careful with arava. i was on it for 1 month and it gave me a rash so bad in my genitals that my dermatologist thought that i would need surgery. once she had me stop arava, the rash had gone away. i very first day i was on it i had a body rash. be very aware of any itching or developement of a rash…..god bless and good luck……kozlo52