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Posts (51)

Fri, Jun 7 2:50am · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

my friend was on xeljanz for about a year and it made her sick. She got off any biologixc modifiers and is on medical marijuana now and has not felt this good in years. i don't know her ration of THC/CBD that she is on…..kozlo52

Fri, Jun 7 2:46am · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

be very careful with plaquenil. It can affect your eyes. you'll need to get your eyes checked per your rheumatologists recommendation. What is your sed rate? in my worst days my sed rate was as high as 150…..kozlo52

Thu, May 23 2:07am · CBD oil for pain in Chronic Pain

my experience with CBD oil on back pain is that it really doesn't help if you have stenosis (L3-L4-L5) like i have. I used to take 2 drops under the tongue and hold it there for 60 -90 seconds and then spit it out. I then did hot water rinses in my mouth and spit, followed by honeys under the tongue for 60 seconds and then spit . i did these rinses twice, because my stomach will be disturbed by the oil in it. The CBd oil did help with all my other joints somewhat. I also have temple and forehead headaches because of trigeminal neuralgia. CBD oil does nothing for that. My nephew uses medical marijuana for his failed lower back operation, which contains some THC and it does really alleviate his pain. I have had cortisone shots in my lower back which had helped previously. i need to get another set of these. Usually three shots (1 every 3 weeks) will help tremendously. When your pain specialist injects have him/her inject very slowly and ask you as he is doing this how are you feeling. If injected too fast, you run the risk of tremendous back pressure for a short period of time as well as the possibility of an epidural induced headache which will last for a whole day. The injection should be done with a flouroscope so the surgeon can see where it goes into the joint, otherwise he/she may hit the epidural fluid and thus the horrible headache. I was told by a chiropracter that if you rub the CBD oil around the areas of the headache (keep away from the eyes) it should help the head pain. Have you had an MRI of your neck? My neck MRI indicates so much arthritis and disc misalignment that it can't be operated on. good luck and best wishes…….kozlo52

Sat, May 18 2:24am · CBD oil for pain in Chronic Pain

the spine simulator will act like a tingle when there is pain. it is similar to a TENS unit. I have talked to a churc member who has a spine stimulator who says it has not helpedhim eith his lower back pain. I have stenosis at L3-L4-L5 and am in the process of getting epidural shots in the lower back.hiowever getting these shots you have to have your blood sugars monitored since these will cause gluscose levels to rise……kozlo52

Sat, May 18 2:19am · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

i have never had any bloodwork problems with my RA (30 years). I would suggest you have your B12 level checked as well as a copmplete vitamin level check. when i had acid reflux my B12 levels were under 100 (range= 200-1200) . I assume you are taking a multivitamin. you didn't say if there is any acid reflux. have your calcium levels checked also. RA will make you feel tired, just by it's nature. what is your sed rate (0-20) is normal? what does your rheumatoid factor indicate?… good luck and keep us informed….kozlo52

Tue, Mar 26 1:29am · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

since you are on the meds you describe make sure you get bloodwork to check your liver enzynes and to do urinanalysis to make sure your kidneys are functioning properly because of mobic. Mtx was a chemo drug from the 1940's to fight cancer, which may cause the "run down" feeling. also make sure you take a good probiotic for your digestive track…..kozlo52

Tue, Mar 19 2:13am · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

with RA and the biologic modifers your whole immune system is suppressed. this means you can be subject to any viruses/ colds very easily. my experience with biologic modifiers was horrible, the worst being kidney failure which put me in the hospital until the kidneys came bac; torn retinas in both eyes requiring surgery; a severe rash in the groin which almost would have required losing my testicles. but that is my system. not everyone will experience what i had. also if you go on any biologic modifier have your liver enzymes check before and during the use of this medicine since a lot of it has to metabolize thru the liver…..i had at one time cellulitus and had c.diff. but the c.diff was after the removal of my gallbladder. c. diff can be eradicated with vancomycin orally, but it is a very strong antibiotic and can be hard on the digestive system, as i experienced. i was on it for 2 weeks and my stomach was hurting all the time.

Tue, Mar 19 2:02am · Rheumatoid Arthritis (RA) - Introduce yourself and meet others in Autoimmune Diseases

with a 2:1 cbd/thc ratio did you feel effect right away and how long did the effect last?did you use pill form or vapor form? I ask this because i am going to get a certificate for medical m. sometime this week and with my bad digestive track i will probably have to go vapor…kozlo52