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Tue, Sep 17 2:20pm · Celiac Disease (refractory type) in Digestive Health

Celiac Sprue affects the small bowel. Biopsies for that are done in the first part of the small intestine called the duodenum. Of course get clarity on this. I would think they were looking for different types of colitis in the colon.

Sun, Sep 15 1:58am · Celiac Disease (refractory type) in Digestive Health

This is so hard. So many of us have been just where you are. When the villi is so damaged it takes years to get any significant healing. The nice thing is…healing is possible.
How is your thyroid function? Hashimotos is common along with Celiac Sprue. I would think about that or other autoimmune diseases that might be in play.
This disease like any other really, is such a mental game too. Not like mental illness and not depression, but simply mental exhaustion. Go with the exhaustion, don’t fight it, that in and of itself is exhausting. But…also do what you can…when you can. Like a short walk inside the house…or stand for a bit…or sit and move your arms and legs.
Look into the AIP diet. The foods are so healing and lessen inflammation in your body. Every bite needs to be nourishing. Nothing processed for now is best. You will be amazed at how a few changes and learning about what your body needs does to speed healing.
Smile often, for mental energy. Read everything you can about Celiac and food choices. Get your body working with simple moves. Ask for help from everyone who can and will. Get good passionate medical help, demand tests and answers. You are not depressed, you are sick and need help.
You can make it past this stage, keep a diary to see your progress.
Every food might seem to bug you, keep eating right and it will get better.
Many of us can’t do oats, no one mentions this, grains of any kind are hard to digest when you are in this storm.
Keep fighting… never give in…live and smile and laugh. Surround yourself with loving caring people.
Someday soon you will be better❤️

Thu, Jul 18 8:16am · Celiac Disease (refractory type) in Digestive Health

Oh forgot!! 15% of us cannot do oats of any kind. They are a rotation crop with wheat fields. Even safe ones make me extremely sick.

Thu, Jul 18 7:44am · Celiac Disease (refractory type) in Digestive Health

Good morning! I have been where you are and know the frustration. There is hope and help and healing.
Fist and foremost get on a probiotic, a good strong gluten free one. I get mine from Kirkman, ordered online. I used to use VSL #3, this is available in the fridge at a pharmacy, Costco has the best price. Just ask at the pharmacy desk for it. Take it morning and night.
Start on the AIP way of eating. It is the best for getting your inflammation down. Do it for as long as you can, my goal was a week, then a month. I felt so good that I didn’t reintroduce foods for several months.
Exercise is extremely important. Start with yoga simple posses, some weights and as much walking (indoor or outside) as you can.
The GF products are usually unsafe because of cross contamination, we are dealing with microscopic amounts that make our immune system over react and destroy the villi. It is a constant vigilance. Stay to the edges of the grocery store. No cheerios, they are not safe, look for products from a dedicated production line only.
Verywell.com has great advice, also glutendude. Edison Grainery (edisongrainery.com) is the only business that I will get pastas. Nuts.com has GF products. “Against the Grain” products are safe too, try the AIP diet first though before doing any processed foods.
Write me anytime, you will recover and heal, it takes all your will power, you know battles well, you will be great soon!!
Most of all keep your mind still, stress is the hardest part. Find or rediscover a hobby. Make a daily diary to see your progress. Write down what you are grateful for each day.
Leader brand immodium is safe, alka selzer, Benadryl…all are my lifesavers. You can get your life back and be better than ever!!!

Mon, Jun 10 9:41am · Undiagnosed auto immune disease in Autoimmune Diseases

Good info about different viruses that cause Mono…

https://www.cdc.gov/epstein-barr/index.html

Sat, Feb 16 12:13pm · Draino guts with tender nuts in Digestive Health

Wow all of this does not sound fun at all!! Just a suggestion, have you been to a Doctor that specializes in food intolerance or sensitivity? I don’t know much about the keto diet, the right carbs are so important in any medical diet, but doing it just slightly wrong for any specific cause can be detrimental. Treating the cause and not the symptoms can be such a struggle in healthcare.
Examine different autoimmune diseases, mine is Celiac Sprue. The simple crackers to settle my stomach were killing me. So hard, but keep an open mind and never stop trying to figure it out.

Thu, Jan 31 6:46pm · Undiagnosed & desperate. in Autoimmune Diseases

Hey I hope that you are thriving now!! These things can be so mindboggling to say the least. When a food destroys your villi nothing works right no matter what diet you choose. The good news is that you can heal. A simple illumination diet won’t do much. What most times is needed is an intense food regiment guided closely in a health clinic setting. Celiac is very hard to diagnose, not saying that is it, but in lots of cases it is. Gluten Zero and the AIP diet is worth a try. It takes much research and diligence to get healthy, and even more to stay healthy. As far as I know HLA DQ2 and HLA DQ8 are celiac genes,HLA DQ1&3 are gluten sensitive genes. Testing for all of these would be good.My sister constantly was told she didn’t have celiac, an endoscopy showed much damage, some just continually test negative. Maybe it’s because a patient is already gluten free-ish and there are just no detectable antibodies. Tricky stuff, hope you figure it out…

Apr 11, 2018 · Undiagnosed & desperate. in Autoimmune Diseases

Gluten free is a slippery slope way of eating. Read about the AIP diet. Gluten free products that are highly processed are unhealthy to say the least. Healing will not happen. Try the autoimmune Protocol for as long as you can stand and see if any symptoms subside. Not many can do it, the standard American diet is extremely hard to ween off of. Processed anything is very addictive. Hope you find your answers. If you can pick it, dig it…meat if you like…eat it. If it has a shelf life, leave it on the shelf. Good luck!!!