Thank you Rosemary. They have since decided they think I have Autoimmune Hepatitis. We shall see fairly soon. Julie
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I have been diagnosed with fatty liver for years and slightly elevated liver enzymes since 2009 but no one payed any attention to it until I continued to come into the ED with right upper quadrant abdominal pain. Then they finally realized my common bile duct was dilated to 9-11 depending on which report you read. My liver is enlarged, lobular contour and nodules. I had a brain tumor in 2002 so obviously I’m not happy about going through this as well. I had 3 young children then so now my 3 children are young adults and understand this more. Now it is more scarey for them….like myself. I have a liver biopsy this mid April so while I am not excited to go through this I am excited to find out where we are with this and what we need to do next.
I am most concerned with continuing to work, pay my bills and keeping health insurance! Any advice there? A person could starve to death while waiting to be approved for disability and I don’t have any reserve (or husband). Julie
Mar 7, 2017 · So scared: Brain tumor on watch and wait has grown in Brain Tumor
I have a grade 2 astrocytoma with the primary tumor behind my left eye bordered by my optic nerve and carotid artery and then there is a wing that extends out into my left frontal and temporal lobe that is intermingled with normal brain tissue. Because of the location of primary tumor and the extent of other tumor I was not a candidate for surgery or radiation. I took a year of oral chemo therapy. They said it is not a matter of if it grows but when because these tumors always evolve into higher grade tumor. They gave me 5-7 years to live. That was 15 years ago and my tumor remains stable. You just never know. Good luck. Hope it is going well for you.
You will never feel “like yourself” again because cancer changes you. You can make it for the good or the bad. I said the same thing to my nurses. I am a brain tumor survivor and nurse too. They told me I was different now because you can’t go through a fight for your life and not be different. Accept the change. Manage your symptoms if needed but you are a new person. I was diagnosed with same thing but grade 2 and they gave me 5-7 years to live and that was 15 years ago and my tumor remains stable. I was not a candidate for surgery or radiation. I only had a biopsy. I take a lot of medication and have had health problems related to the drugs but I work full time and have 3 children and 2 grandchildren. Good luck! You can do it!
That is unfortunate but it happens. Check with your cancer center and see if they manage chronic pain there. That was what worked for me. And they don’t treat you that way at all. Everyone deserves pain relief whatever it takes. Keep trying. Good luck.
You are not alone. If you are in daily pain, as I am, my advice to you is to find a good pain management doctor who will treat your pain and not treat you like a drug seeker. Good luck.
Hi Spammy, I was diagnosed with Stage 2 Anaphlastic Astrocytoma in 2002. I was not a candidate for surgery or radiation because of the extent of it and the location. I was in a clinical trial of Temodar. They told me it is not a matter of if it grows but when because this type of tumor always evolves into higher grade tumor. That has been 15 years ago now and it is stable. It has become less dense and smaller. I have some side effects of the chemo like headaches etc but otherwise doing well and working full time. You can do well too! Just keep a positive attitude! Good luck!