Member has chosen to not make this information public.

Posts (3931)

2 hours ago · Treating Osteoporosis in Bones, Joints & Muscles

@jakedduck1 The 11% came from my oncologist when I asked point-blank but I have confirmed that with online research. I think it’s a case of when it metastasizes it’s not as easy to pinpoint so more difficult to treat than if you had a primary cancer. My husband had prostrate cancer and with it also, if it recurred there would be a much lower chance of being able to eradicate it. It’s been three years on Monday since my transplant so I’m feeling that I’m pretty much out of the woods. Two more MRIs and they will consider it to not be a threat.

11 hours ago · Treating Osteoporosis in Bones, Joints & Muscles

@jakedduck1 Leonard, this got by me but I am now trying to go over these posts re. osteoporosis so I finally saw it. I just googled and found this article:


What I do know is that since I had malignant lesions in my original liver I have an MRI yearly to make sure they did not metastasize. If at some point they do find cancer that originated with that the odds of survival are only 11% but I just figure that's not going to happen to me. I always figure that bad things won't happen to me but unfortunately I haven't been right a number of times. My odds have to change at some point.

11 hours ago · Real Ear test in Hearing Loss

@dsh33782 Thanks for responding.
My Oticon Opn 1 aids were also an improvement on clarity from my previous HAs, but the directionality is not as good with these as it was with my old aids, Phonaks. With the Phonaks I could be a noisy restaurant and click that feature on, and be able to hear the other people at the table, when facing them, better than they could hear each other! I do not have the TV adapter, I don't watch TV that much, but I also have the Connect Clip which really helps in some situations if the person is willing to wear it. I have had people say that they did not want to wear it. I too had a problem at one point and the aids were sent back to Oticon, and sure enough the aids had a problem. The replacement ones made a huge difference.

So, did you have the "real ear" test? That's what I am trying to figure out, if it makes a difference so I should plan to go to an audiologist who does it. From what I can understand that test is done after you get the hearing aids to determine if they are doing what they should be doing for your hearing. Is that correct?

Thanks, Don.

14 hours ago · Hearing Loss: Come introduce yourself and connect with others in Hearing Loss

@jfobes You are exactly right about most doctors. There are a few who realize that sometimes patients have some valuable personal knowledge. My orthopedic doctor is like that. I had a post-TKR problem and had some input from other post-transplant patients here on Connect, but my transplant team would not say it was a possibility. My orthopedic doctor actually said that sometimes patients experiences are valid even when science doesn’t support them!
I think many of us have experiences beyond the typical and doctors have to accept that.

15 hours ago · Liver transplant support group in Transplants

@livertrex Are you taking any prescription pain relievers such as oxycodone, OxyContin, hydrocodone, dilaudid, or tramadol? When I take any of those I lie awake staring at the ceiling for hours. I generally fall asleep at around 5 or 6 in the morning so then I have to sleep all morning. I have to be totally desperate to take anything these days.

15 hours ago · 1 year anniversary of TKR in Joint Replacements

@irol There should be a “not like” ability here rather than just like. It’s terrible that your surgeon is so unresponsive to your problems. I do not like that at all.

15 hours ago · 1 year anniversary of TKR in Joint Replacements

@ellerbracke I can kneel for a very brief amount of time if I am on a solid surface. I tried kneeling on my bed once to reach something and with the surface not being firm I couldn’t balance!
I am glad I don’t need to kneel for anything in particular and do not kneel in church.

1 day ago · Severe Pain after 2nd TKR in Joint Replacements

@ssbionicknee oh no, I’m sorry to hear that you’ve lost range of motion. I actually did too. When I had the in-house PT my flex was just over 120 and he was confident that I would reach at least 125. Then I went to the outpatient PT and it went down to about 117. I know, that’s not bad but I really set my goal at 120.

Hopefully your flex has not decreased to the point of needing MUA. There is another procedure that is easier that can improve flex a bit. Has your surgeon mentioned that? I would to need to go back to my old notes to find what the name of it is but if you want to know I will be glad to. I think it’s something like lysis.