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Jul 9, 2019 · Ways to Advertise: How Did you Find a Kidney Donor? in Transplants

All social media (Instagram, Facebook, Twitter etc) is helpful but it is my experience that you need a webpage or blog to direct people to. I have read articles about this and what it does is allows people to go to that site and learn what they need, be able to contact you and the site can be shared even when you are not posting things. I am not computer savvy so I started a caring bridge site (caringbridge.org). It is simple and free and you can put journal entries to keep followers or visitors updated on your health and progress. I also made 5×7 cards and placed them at businesses I frequent, with their permission of course. And I have a magnet on the back of our truck and a tire cover on our Jeep with my need and my cell phone number. I have had very little traffic from the car advertisements but it only takes one. I did have one person take a photo of the magnet and post it on FB and got a call from that (the person was denied). Whatever advertising you need to be consistent with sharing your need, your story and educating people about kidney transplants, living donors, dialysis, and the size of the waitlist.

Good luck…and don't give up!

Oct 25, 2018 · This and That and Talk - My Transplant in Transplants

@cmael Congrats on your transplant! I have not had mine yet but the people I follow on Instagram have had the issue with losing hair (some have even lost their hair or cut it to donate). I couldn't tell you all the remedies they have suggested except biotin (ask your nephrologist first if you take this as a supplement). I do know that it is temporary. I don't know if that is because meds change and decrease over time or the body adjusts but those who have discussed it have all had transplants within the past year. It looks great in the photo!

Jul 20, 2018 · New Transplant Blog Posts in Transplants

I have not posted for a long time but I have been following discussions when I have time. I just thought I'd let people know that I'm now on the transplant waitlist with a GFR of 19. I'm also actively seeking a living kidney donor as I have no family members that are able to donate because they have PKD (my genetic kidney disease) or they have already donated a kidney. I feel good but I'm very busy with family commitments and seeking a donor so I do not have time to stay active with Connect. I do want to thank all those on Connect for their support and all I learned from them. I do champion Connect on my website that I am using to find a kidney because I think Mayo and Connect is a great source of information and support. All the best!

Jun 13, 2018 · Mayo Clinic Transplant Innovations in Transplant

I'd love to see an artificial kidney to avoid dialysis until a transplant is possible.

Apr 24, 2018 · Video Q&A and Behind-the-Scenes: Liver Transplant in Transplant

When you are receiving a deceased organ how much time do you have to get to the hospital for surgery? I live several states away from Mayo in Rochester and am wondering if I'm going to have to temporarily move there once I'm on the wait list.

Apr 18, 2018 · New Transplant Blog Posts in Transplants

@jerrydrennan Thanks for your prayers! I will pursue this once I'm officially on the transplant list. My GFR is 20 now but I get an iothalamate test next month to get an exact reading because my nephrologist thinks it will go up to 21 or 22 once I'm off the study med so hopefully I have a little longer.

Apr 18, 2018 · New Transplant Blog Posts in Transplants

@jerrydrennan I saw those applications and I will pursue this avenue when I get on the waitlist if I'm not able to have a living donor. Thanks so much for sharing as it is something I never thought of before.