Thank you Rosemary for your positive input. It really is encouraging.
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Thank you for your reply. It’s the first and only positive thing I’ve heard since my diagnosis. It gives me hope which is what I’m searching for right now. I’ve gone through the shock and denial phase and now acceptance. My daughters are still in shock and panic and I haven’t had a chance to talk to my son as he’s been away on his honeymoon for the past two weeks returning tomorrow. What an awful thing to come home to.
Hello out there! A week ago I had a chest X-ray by my new doctor because I had a positive TB skin test. No TB but they found a scar on my lungs – IPF – idiopathic pulmonary fibrosis. Of course I googled all the information I could to find out more about this disease and what I’ve learned is devastating and unbelievable. No cure, no medication, 3 to 5 years after diagnosis? This had turned my world upside down and I’m looking for support from those who also have this disease. I have had several bouts of bronchitis and pneumonia in the past 2 or 3 years, don’t smoke nor live with people who smoke, live in Honolulu, Hawaii. I am a 66 yr old new grandmother and desperate to live longer to enjoy my new role as Nana.