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Posts (19)

Mon, May 13 7:15am · CardioMEMS in Heart & Blood Health

Has anyone had a cardio-MEMES HF device put into their pulmonary artery? They say doctors can predict the beginning of heart failure 3 weeks prior and adjust medication to stop it. I was supposed to get heart transplant, but have avoided it over last year due to improvement in health. If I go into failure again, that will be it and I will have to transplant. I am hoping to hold off as long as possible as technology gets better everyday. I would appreciate any information you can offer about the device, implanting, reporting etc…
Thank you!

Thu, May 9 10:28pm · Pacemaker and medications; CardioMEMS HF device in Heart Rhythm Conditions

Has anyone had a cardio-MEMES HF device put into their pulmonary artery? They say doctors can predict the beginning of heart failure 3 weeks prior and adjust medication to stop it. I was supposed to get heart transplant, but have avoided it over last year due to improvement in health. If I go into failure again, that will be it and I will have to transplant. I am hoping to hold off as long as possible as technology gets better everyday. I would appreciate any information you can offer about the device, implanting, reporting etc…
Thank you!

Thu, May 9 4:50am · Exercise-induced Hypertension in Heart & Blood Health

Has your cardiologist mentioned any for of cardiomyopathy? There are different kinds and can show themselves at different points in life. I have a genetic form that became obstructive in my mid 40s. Cardiomyopathy causes the heart muscle to become stiff and any form of exertion can cause high BP, irregular heart beats, etc…. might be worth checking into and mentioning. Good luck!

Sun, Apr 28 10:57am · Sadness over diagnosis in Just Want to Talk

Also, you said you were alone and wanted it that way. I felt that way for 3 years. It wasn’t until after I started to fight back and get moving, that I realized that even short little conversations with family and even strangers I meet, help to make you feel alive! Please try to connect with others. Share your health issues with some, others just laugh with. Interaction with others is very important! If your church has functions, try joining them if your well enough, even if it is something you wouldn’t normally do. Praying you feel better!

Sun, Apr 28 10:50am · Sadness over diagnosis in Just Want to Talk

Keep going strong! Get out on beautiful days in the sunshine, it has been a long winter (at least here in NY) I used to drive to a park that had a lake. Bring a book and enjoy nature. It has a very calming effect if you let yourself absorb it all.
I had a hard time finding a support group. I reached out to various therapist offices and finally found mine. Don’t give up!
If you have time and money, perhaps visit with a family member

Sun, Apr 28 7:33am · Sadness over diagnosis in Just Want to Talk

Being hit with a bad health diagnosis is enough to knock the strongest healthy person down. I had AFIB which only came out in my late 40s. After multiple doctors appts, different facilities, I found out it was caused by genetic heart condition. I ended up having major heart surgery, 6 to be exact, almost dying 2 times, putting on 60 pounds from being immobile, all over 4 year time table. After all that, I was told I would need to be put on heart transplant list. It was at this point I said to myself HELL NO! Not yet, I am too young! I was used to hiking, walking, running, kayaking, etc… This can’t be my life!
I joined a support group with people who have various illness and it was best move I made. I lost 30 pounds just dieting ( because any exertion would cause heart to start going into failure). I can finally walk up and down my driveway with no help! I’m working on the other 30 pounds so can increase my walking and make me feel stronger.
Last time I saw the 2 cardiologists (during simple gall bladder surgery) I was walking in hallway in hospital, their mouths dropped open. They could not believe how well I looked and was doing.
The moral of my story is not to get pity for myself but to show you Do Not Let Your Illness Define Your Life!
Pick yourself up, Accept what your dealing with, Keep moving forward. There will always be a day where you crash and feel sorry for yourself, that’s ok! Just get up the next morning and restart on a good path! I have restarted so many times, my family now uses that word and we laugh about it!
I wish you all the best! Know you are not alone!

Sat, Apr 13 8:48am · ICD help! in Heart & Blood Health

I have one (100 % pacing also) and get all kinds of pains, pulling etc… It even feels like it’s moving around to the point that I can feel and see the connections by touching there. I went to Dr to have it checked out, and in my case, it was caused by muscles and nerves in and around the unit. It can be quite painful and uncomfortable, but in my case not worth another surgery to move.
If you have been shocked before and know what feels like, and if you know battery is good ( from having device checked in recent past months) I would just go talk to Dr on Monday, as long as you don’t notice any other symptoms that there may be problem with heart itself.
Just my opinion!

Fri, Apr 12 9:40am · sternal wire removal in Heart & Blood Health

Only a doctor who knows your medical history and why they may need to come out ( since you did not say if there was anything medical going on with them) should answer this question. I believe that once they are in, tissue grows around them making it hard to remove and very dangerous depending on how much intertwining there is. Get an opinion from more than one doctor is my advice. Good Luck!