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Posts (23)

1 day ago · Heart Failure with Preserved Ejection Fraction (HFpEF) in Heart & Blood Health

Haven’t had chance to call. In middle of relocating elderly parents, so little nuts, between that and trying to stay healthy, as I am sure you can relate to.
I will post when have opportunity to call

6 days ago · Heart Failure with Preserved Ejection Fraction (HFpEF) in Heart & Blood Health

Will do next week when get back home. Let you know what I learn

Fri, Jul 12 6:39am · Heart Failure with Preserved Ejection Fraction (HFpEF) in Heart & Blood Health

Hi Colleen! I checked the link you sent, not much information about procedure, so lots of questions about this trial.
Would love to be added to this group

Fri, Jul 12 6:34am · Heart Failure with Preserved Ejection Fraction (HFpEF) in Heart & Blood Health

Wow – Good Luck Rob ! I hope trial works for you. I suffer from diastolic hf, so I will be following your results. Keep you in my prayers 🙏🏻

Thu, Jun 6 12:36pm · Preparing for a heart transplant in Transplants

Thank you so much for adding me to this discussion. I am currently a patient at Columbia Presbyterian in NY but follow Mayo closely. Hoping to buy a few years before go through heart transplant, but we are probably relocating to Florida when husband retires, and daughter done in school, so my first choice would be Mayo down there.
Good luck to both of you. I will keep you in my prayers! 🙏🏻

Thu, May 9 10:28pm · Pacemaker and medications; CardioMEMS HF device in Heart Rhythm Conditions

Has anyone had a cardio-MEMES HF device put into their pulmonary artery? They say doctors can predict the beginning of heart failure 3 weeks prior and adjust medication to stop it. I was supposed to get heart transplant, but have avoided it over last year due to improvement in health. If I go into failure again, that will be it and I will have to transplant. I am hoping to hold off as long as possible as technology gets better everyday. I would appreciate any information you can offer about the device, implanting, reporting etc…
Thank you!

Thu, May 9 4:50am · Exercise-induced Hypertension in Heart & Blood Health

Has your cardiologist mentioned any for of cardiomyopathy? There are different kinds and can show themselves at different points in life. I have a genetic form that became obstructive in my mid 40s. Cardiomyopathy causes the heart muscle to become stiff and any form of exertion can cause high BP, irregular heart beats, etc…. might be worth checking into and mentioning. Good luck!

Sun, Apr 28 10:57am · Sadness over diagnosis in Just Want to Talk

Also, you said you were alone and wanted it that way. I felt that way for 3 years. It wasn’t until after I started to fight back and get moving, that I realized that even short little conversations with family and even strangers I meet, help to make you feel alive! Please try to connect with others. Share your health issues with some, others just laugh with. Interaction with others is very important! If your church has functions, try joining them if your well enough, even if it is something you wouldn’t normally do. Praying you feel better!