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Fri, Feb 28 7:05am · Oxyhemoglobin/hemoglobin drops: What is the cause? Dangerous? in Heart & Blood Health

I am at end stage heart failure from HOCM and recently had a venous puncture done during exercise catherization. My hemoglobin levels were normal (15.8) My oxyhemoglobin were not. When I’m at rest, not moving at all, I get only 66% of what healthy people get (92-98). When I move – even just walking, standing and moving it drops to 36%. I have 3 questions if anyone knows answers-
1) Is this what is causing shortness of breath, brain fog, tiredness and headaches?
2) How dangerous is this?
3) Is this caused by Stiff Heart?
Any info would be appreciated. Just trying to understand what I am going through.
Thanks !
Nini

Wed, Feb 26 5:24pm · sternal wire removal in Heart & Blood Health

The wires being removed was done by the surgeon who did first surgery, then the peck flap by plastic surgeon

Wed, Feb 26 5:22pm · sternal wire removal in Heart & Blood Health

Once your sternum is cut like that – wires or no wires- it will never feel the same. I ended up with infection, had wires removed and peck flap surgery and I still have the same issues you describe. It took me few years, but I have learned to live with and compensate where I have to. Consider what the alternative would have been if you had not done the surgery. I wouldn’t be typing this text. Perhaps looking at alternative may help you also deal with this. Stay strong! 🙏🏻

Jul 18, 2019 · Pericardial Resection/Window - HFpEF, Pericardial Effusion in Heart & Blood Health

Haven’t had chance to call. In middle of relocating elderly parents, so little nuts, between that and trying to stay healthy, as I am sure you can relate to.
I will post when have opportunity to call

Jul 12, 2019 · Pericardial Resection/Window - HFpEF, Pericardial Effusion in Heart & Blood Health

Will do next week when get back home. Let you know what I learn

Jul 12, 2019 · Pericardial Resection/Window - HFpEF, Pericardial Effusion in Heart & Blood Health

Hi Colleen! I checked the link you sent, not much information about procedure, so lots of questions about this trial.
Would love to be added to this group

Jul 12, 2019 · Pericardial Resection/Window - HFpEF, Pericardial Effusion in Heart & Blood Health

Wow – Good Luck Rob ! I hope trial works for you. I suffer from diastolic hf, so I will be following your results. Keep you in my prayers 🙏🏻

Jun 6, 2019 · Preparing for a heart transplant in Transplants

Thank you so much for adding me to this discussion. I am currently a patient at Columbia Presbyterian in NY but follow Mayo closely. Hoping to buy a few years before go through heart transplant, but we are probably relocating to Florida when husband retires, and daughter done in school, so my first choice would be Mayo down there.
Good luck to both of you. I will keep you in my prayers! 🙏🏻